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2022 World FTD Awareness Week

September 25, 2022 - October 2, 2022

The 2022 World FTD Awareness Week will take place September 25 – October 2. This annual event comprises a full week of events, activism, and engagement designed to bring more…

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AFTD’s Food for Thought

September 25, 2022 - October 9, 2022

Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held the last week of September through first week of October, Food for Thought…

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Virtual Duke Caregiver Community Event

September 20, 2022 @ 8:30 am - 5:00 pm EDT

Duke Health’s free virtual event offers you the chance to learn about the latest disease research, understand advancements in caregiving, and discover ways to find support as you care for…

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FTD Awareness Apparel

September 20, 2022 - October 11, 2022

After three years of her family noticing differences in her, Debbie Poirier was diagnosed with FTD in June 2022. To help spread awareness of the disease, the Poirier family created…

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WailOn – Waylon Jennings Tribute Band, Performance IMO Tim Wisniewski

September 17, 2022 @ 8:00 pm - 10:00 pm EDT

Chris Wisniewski and his band, WailOn, will be hosting a tribute concert in memory of Tim Wisniewski, Chris’ father, who died from FTD in 2016. The concert will be held…

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6th Annual Crusade for a Cure Golf Tournament

September 3, 2022

AFTD Ambassador Deb Scharper will host the 6th Annual Crusade for a Cure Golf Tournament on September 3, 2022, with proceeds benefiting AFTD’s research initiatives. The tournament will be held…

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AFTD’s 2022 Driving Hope Golf Tournament (CO)

August 20, 2022 @ 11:00 am - 7:00 pm EDT

Help support AFTD’s mission, get in 18 holes of golf on an exclusive course, and spread FTD awareness by joining AFTD’s 2022 Driving Hope Golf Tournament on August 20th at…

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CHASING RAINBOWS: A Story of Love, Loss, and Finding Purpose

August 19, 2022 @ 7:30 pm - August 20, 2022 @ 7:30 pm EDT

Bob Powers from Portland, OR will be performing CHASING RAINBOWS: A Story of Love, Loss, and Finding Purpose at the COHO Theater on August 19 & 20, 2022 at 7:30 PM.…

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In-Person Meet & Greet, Roseville, CA

August 14, 2022 @ 4:00 pm - 6:00 pm EDT

Have you been touched by FTD or think a loved one has FTD? Join AFTD Ambassador Terry Walter and AFTD volunteer Ed Fargusson for an informal gathering in Roseville, CA…

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Healthcare Professional Educational Webinar: Person-Centered Care for Primary Progressive Aphasia

August 11, 2022 @ 4:00 pm - 5:00 pm EDT

Primary progressive aphasia (PPA) is a clinical neurodegenerative dementia syndrome, which can be caused by Alzheimer’s disease or frontotemporal degeneration. The progressive loss of language experienced by those with PPA…

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AFTD’s 2022 Driving Hope Golf Tournament (NY)

August 8, 2022 @ 11:00 am - 7:00 pm EDT

Help support AFTD’s mission, get in 18 holes of golf on an exclusive private course, and spread FTD awareness by joining AFTD’s 2022 Driving Hope Golf Tournament on August 8th…

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17th Annual George F. Sidoris Memorial Golf Outing

July 30, 2022

The 17th Annual George F. Sidoris Memorial Golf Outing will be held on July 30, 2022 at the Lost Nation Golf Course in Willoughby, Ohio. The event will feature a…

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Perspectives in FTD Research Webinar: Clinical Trials and Beyond — What Do I Need to Know about Types of FTD Research?

June 24, 2022 @ 3:00 pm - 4:00 pm EDT

When people choose to participate in FTD research, scientists are able to gain a clearer understanding of this disease as they seek effective treatments. Taking that first step can be…

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Healthcare Professional Educational Webinar: Person-Centered Care for Behavioral Variant FTD

June 22, 2022 @ 4:00 pm - 5:00 pm EDT

This one-hour educational program will provide healthcare professionals a clear understanding of the most common bvFTD behaviors, their impact on families, and person-centered interventions to manage behaviors and improve quality of life for persons diagnosed and caregivers.

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Cloud Gravel Invitational 2022

June 17, 2022 - June 19, 2022

Blake Ovard is hosting the Cloud Gravel Invitational—a gravel cycling event—on June 17-19, 2022 in the Sacramento Mountains of New Mexico. Participants can sign up for one of four distances:…

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2022 Colfax Marathon

May 14, 2022 - May 15, 2022

Join select AFTD staff and members of the local community as we bring greater FTD awareness to the surrounding Denver area and raise funds to help people affected by FTD.…

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UNDERstanding Frontal Temporal Dementia and Primary Progressive Aphasia

April 21, 2022 @ 6:00 pm - 7:30 pm EDT

AFTD is a co-sponsor of this installment of “Under the Dementia Umbrella,” a webinar series presented by the North Carolina chapter of the Alzheimer’s Association. Heidi Roth, MD, of the…

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AFTD 2022 Education Conference

April 8, 2022

Connect, learn, and engage at the AFTD 2022 Education Conference. Persons with FTD, care partners, families, and health professionals will find the latest information, resources and support for the FTD…

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Amplifying Your Voice in FTD Research: Why Am I Asked So Many Questions?

March 28, 2022 @ 1:00 pm - 2:00 pm EDT

When studying FTD, researchers ask a lot of questions. Research participants may find themselves thinking, “Why do you need to know all this information?” This Perspectives in FTD Research webinar,…

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Virtual Meet & Greet El Paso and New Mexico March 2022

March 23, 2022 @ 7:00 pm - 8:00 pm EDT

Have you been touched by FTD? Take advantage of this unique opportunity to join AFTD Ambassador Susan Eissler for a virtual Meet & Greet (via Zoom video conference) and meet…

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