What's New
Events
Mental Health in Underrepresented Communities: Reducing Stigma & Overcoming Barriers
AFTD volunteer Sharon Land will be hosting an information table at the event Mental Health in Underrepresented Communities: Reducing Stigma & Overcoming Barriers, being held at the YWCA of Elyria…
Advocate for Awareness: Working with Lawmakers to Highlight FTD
FTD advocates can help bring awareness to their communities by working with lawmakers to issue proclamations and resolutions designating a statewide FTD awareness week. But what are proclamations and resolutions,…
19th Annual George F. Sidoris Memorial Golf Outing
The 19th Annual George F. Sidoris Memorial Golf Outing will be held on July 20, 2024 at the Lost Nation Golf Course in Willoughby, Ohio. The event will feature a…
FTD: The Other Dementia
AFTD Ambassador Nanci Anderson will provide an overview of FTD, along with available resources available in the Twin Cities and from AFTD. Download this flyer to learn more.
Pittsburgh, Pa. Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in the Pittsburgh, Pa. area on Monday, July 15. RSVP…
Frontotemporal Degeneration (FTD): Symptoms, Diagnosis, Responses, Outcomes, Family Stories
AFTD Volunteers Bruce Lipman and Erica Heffernan will be hosting an informational session at the Evanston Public Library on July 2 from 6-7:30 PM, CDT to offer powerful, personal perspectives…
Caring for Carol by Caring for Me
In Caring for Carol by Caring for Me, Anthony P. Mauro Sr. recounts the emotional journey of caring for his wife, Carol, through her battle with FTD. The memoir highlights the…
Second Annual Kim Rose Cure for Dementia Wings & Rings Golf Outing
Christin Rose and her family are hosting the 2nd Annual Kim Rose Cure for Dementia Wings & Rings Golf Outing on June 28, 2024, at Glenview Golf Course in Cincinnati,…
VA Caregiver Support Annual Summit
AFTD staff will have an information table during the annual summit of the VA New Jersey Health Care System in East Orange. The event, which this year is titled “Beyond…
National Meet & Greet for LGBTQIA+ Adults Confronting FTD
LGBTQIA+ people living with or caring for a loved one with FTD face compounding stressors unique to their population. AFTD is committed to providing a safe, affirming environment to access…
FTD & ALS: A Collaborative Approach to Diagnosis and Care
We know of several genes that can cause hereditary FTD, ALS, and ALS with FTD, with C9orf72 the most common. Yet genetics is not the complete story, as these conditions…
New York City Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19 at 6:00…
Newport News, Va. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News. RSVP by emailing event host Stacey…
National Meet & Greet for College-Aged Adults Confronting FTD
AFTD will host a national, virtual Meet & Greet on June 15 for those aged 17-26 who live with and help care for a person living with FTD. We will…
Richmond, Va. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at East End Branch of the Richmond Public Library. RSVP by emailing…
FTD Clinical Research Learning Institute
Hosted by the Penn Frontotemporal Degeneration Center in partnership with AFTD, the FTD Clinical Research Learning Institute is a one-day virtual program that empowers individuals diagnosed with FTD, their caregivers…
3rd Annual Dustin Snyder Birthday Bash Charity Golf Outing
Todd Hartzog and friends are hosting the 3rd Annual Dustin Snyder Memorial Golf Outing on June 9, 2024, at the Colonial Oaks Golf Course in Fort Wayne, IN. The event…
Bristol, Pa. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Margaret R. Grundy Memorial Library in Bristol, Penn., located at…
Powered by Connections Older Adult Month Resource Fair
AFTD Volunteer Ric Fischer will be hosting an information table at the Powered by Connections Older Adult Month Resource Fair in Fairfax, Va. on May 22. This a free event…
2024 Colfax Marathon
Join select AFTD staff and members of the local community at the 2024 Colfax Marathon, as we bring greater FTD awareness to the surrounding Denver area and raise funds to…