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FTD in the News

A care partner recently shared how a cultural disconnect makes dementia care harder for people in the AAPI community

Care Partner Shares How Cultural Disconnect Makes Dementia Care Harder for AAPI Community 

A recent article in Northwest Asian Weekly highlights how a disconnection between care infrastructure and culture can…

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Advocate-Talks-About-Experience-with-Isolation-and-FTD-in-the-LGBTQIA-community

Advocate Talks About Experience with Isolation and FTD in the LGBTQIA+ Community  

Dementia advocate Patrick Ettenes recently shared his experience with FTD with the Times of Malta, and underscored…

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AFTD Ambassador Deb Scharper

AFTD Ambassador Highlights Difficulties in Getting an FTD Diagnosis 

AFTD Ambassador Deb Scharper shared the difficulties that she faced trying to get an accurate FTD diagnosis…

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An editorial emphasized the benefits of telemedicine for treating people with dementia

Editorial Emphasizes Benefits of Telehealth for People with Dementia 

An editorial recently published in The Hill emphasized the benefits of telehealth care for people with FTD,…

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A study is evaluating the feasibility of inertial monitoring units for diagnosing and tracking the progression of PSP

Study Evaluates Wearable Tech for Monitoring PSP Progression 

A study recently published in Movement Disorders evaluated whether wearable technology is useful for monitoring the progression…

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Researchers are working on an iPad app-based cognitive test for people with FTD

Clinical Trial Actively Recruiting for Test of FTD Diagnostic App 

Researchers at the University College London Dementia Research Center are in the midst of a clinical trial…

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Matt Follows, supported by a team of friends and loved ones, managed to hike to the northernmost point of Australia despite Follows's corticobasal syndrome diagnosis

Australian Man with Corticobasal Syndrome Hikes to Cape York 

An Australian man with corticobasal syndrome (CBS) made it to Cape York, the northernmost tip of Australia,…

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Disproportionate Burden of Caregiving for Black Women

Dementia Advocate Highlights Disproportionate Burden of Caregiving for Black Women  

Dementia advocate and thought leader Aisha Adkins wrote recently on the disproportionate burden that Black women face…

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Retired Australian psychologist Bobby Redman, who was diagnosed with frontotemporal dementia, shares how technology helps her in her day to day life

Retired Australian Psychologist Shares How Tech Helps Her Manage FTD 

Bobby Redman, a retired Australian psychologist diagnosed with frontotemporal dementia (FTD), shared with The Sydney Morning Herald…

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Raynor Winn, author of The Salt Path, shared the story of her and her husband Moth's journey managing corticobasal degeneration during their 630-mile hike

“Salt Path Couple” Share Story of Living with CBD and Hiking Through Nature 

Raynor Winn, author of The Salt Path, shared with The Telegraph how she and her husband, Moth,…

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