What's New
In TEDx Talk, Neuroscientist Shares Her Father’s FTD Story and Her Hope for Dementia Research Breakthroughs
Leila Allen, PhD, of Florida International University (FIU), discussed the groundbreaking dementia research that she and her colleagues are performing with pig models and artificial intelligence during a recently published…
Extracellular Vesicles in Plasma Could be FTD-ALS Diagnostic Biomarker, Study Finds
A study published in Nature Medicine finds that a type of particle associated with specific cell subtypes could potentially be utilized as a biomarker for FTD and ALS disorders. The…
Denali and Takeda Open FTD-GRN Clinical Trial Site at UPenn
Denali Therapeutics and Takeda Pharmaceutical Company’s phase 1/2 clinical trial for FTD caused by GRN mutations is opening its first U.S.-based trial site at the University of Pennsylvania (UPenn). The…
Tips & Advice: Incontinence – A Troubling Symptom
Incontinence is a common symptom of FTD and other dementias. But for both care partners and persons diagnosed, incontinence can be one of the more difficult symptoms to manage or even…
Ohio Care Partner Shares Story to Help Others on the FTD Journey
Mary Kay Verhoff, a former FTD care partner from Ohio, recently published a book that tells the story of coming to terms with and navigating her husband’s decline from FTD.…
January 25, 2025: Virtual Meet & Greet for MT, WY, ND, and SD
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in Montana, Wyoming, North Dakota, and South Dakota. The event…
Can a Tau PET Tracer Aid FTD Diagnosis? Study Explores How Tracer Performs in Other Tauopathies
A study published in Science Translational Medicine explores how well the brain imaging tau PET tracer F-MK-6240 (flortaucipir) captures the presence of underlying protein clumps seen in post-mortem Alzheimer’s tissue.…
Help & Hope in Review: The Top Articles of 2024
AFTD is committed to ensuring Help & Hope delivers informative articles and practical resources to ease your family’s FTD journey. Each year, we look back through our archives to see which features…
Dear HelpLine: The Differences Between Clinical Research and Clinical Medical Care
Dear HelpLine, I have FTD and have enrolled in a research study at a major medical center. My care partner and I travel to the site twice a year and…
Linde Jacobs Shares Her Family’s FTD Journey with the New York Times
A recent article in The New York Times highlights the inspiring story of Linde Jacobs, a nurse and advocate carrying a genetic frontotemporal degeneration (FTD) variant. Her journey exemplifies the…
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