Impact Report Web Header 2024

Education

Through multiple initiatives, AFTD educates healthcare providers, researchers, and the public on ways to recognize FTD’s symptoms, best practices for making a diagnosis, and available care and support options, including genetic counseling and clinical trials.

AFTD’s annual Education Conference facilitates meaningful opportunities for people affected to connect with their peers, engage with dementia care specialists and researchers, and learn effective strategies to navigate a diagnosis. Each year, the conference welcomes a global audience with both in-person and virtual attendance options. Recordings of select sessions are available on AFTD’s website and YouTube channel.

IR Education - 1
New York State Senator Michelle Hinchey, whose father’s journey with PPA inspires her FTD advocacy, delivered the keynote address at the 2024 conference in Houston, Texas, and broadcast online.
IR Education - 2
The inaugural FTD w sztuce gallery, hosted at the 2024 conference, featured paintings, poems, photography, and other works of art created by people affected. 99 works were submitted and can be viewed here: theaftd.org/ftd-in-the-arts
IR Education - 3
Volunteers Aisha Adkins and Diana Gonzalez-Morett led a breakout session on finding empowerment through storytelling at this year’s conference. To encourage engagement among in-person attendees, AFTD hosted multiple networking opportunities, including social hours for young adults and persons with FTD and their care partners or caregivers.
BrandonFeldt_CureVCP_2

“AFTD does a great job speaking to the needs of patients, care partners and family members, researchers, and clinicians. I was excited to attend the conference in person for the first time – connecting with and learning from so many others in one place gave me extraordinary hope that others will not be affected by this disease in the future.”

Brandon Feldt, a Board member for Cure VCP Disease and a care partner for his mother, who is living with FTD caused by the VCP genetic variant

Brandon (left) with his wife Cecilia at AFTD’s 2024 Education Conference

AFTD presented 10 webinaria edukacyjne on a broad range of topics, including navigating grief and loss, clinical trials, and how to become an FTD advocate. Three of the ten webinars offered continuing education credits to healthcare professionals, including physicians. Recorded sessions can be found on AFTD’s YouTube channel.

To learn more about our education initiatives, visit: theaftd.org/for-health-professionals

Staff_AAN 2024 - IR Education
AFTD and FTD Disorders Registry staff attended the 2024 American Academy of Neurology Annual Meeting, one of several opportunities throughout the year for us to build connections with healthcare professionals.