Ferrer Doses First Participant in Phase 2 Study for PSP Treatment

Text: Ferrer Doses First Participant in Phase 2 Study for PSP Treatment. Background: A person pours pills into another person's hand.

Pharmaceutical company Ferrer announced that it has dosed the first participant in the PROSPER phase 2 clinical trial for an experimental treatment for progressive supranuclear palsy. The ongoing trial seeks to evaluate the safety and efficacy of the drug FNP-223, which is designed to slow the progression of the disease. The drug works to prevent…

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All in the Family kończy z FTD: wydarzenie Food for Thought firmy Colonial Electric pozyskuje ponad $1 mln od początku istnienia

Patricia "Trish" Bellwoar, who had FTD, smiles as she sits in a wheelchair being pushed by her husband, Joseph Bellwoar.

AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD for nearly 30 years. Since Steve’s initial Colonial Electric Food for Thought gathering in 2014, the event, which features a nine-hole golf tournament, cocktail hour,…

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Rozmowa z neurologiem w Denali Therapeutics

Graphic: A Conversation with a Neurologist at Denali Therapeutics. Background: A photo of Dr. Richard Tsai

Recently, AFTD had a conversation with members of the Denali Therapeutics team, including Dr. Richard Tsai, to provide insights into their work to develop a therapeutic with Takeda to treat FTD-GRN (frontotemporal dementia caused by GRN gene mutations). Dr. Tsai is a neurologist at Denali where he partners with other scientists to design and conduct…

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Webinarium z cyklu szkoleń dla partnerów opieki AFTD: Jak radzić sobie ze świętami, mając diagnozę FTD

The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences. In this webinar, AFTD HelpLine Manager Stephanie Quigley leads a discussion with members of AFTD’s Persons with FTD Advisory Council as they share ideas and…

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Rzecznictwo AFTD: szkolenie w zakresie rozwiązywania konfliktów na szczeblu stanowym

Szkolenie obejmie proces uzyskiwania rezolucji — od identyfikacji ustawodawców do otrzymania zatwierdzonej rezolucji. Obejmie również strategie prasowe w celu maksymalizacji widoczności i zwiększenia świadomości FTD w Twoim stanie. Uczestnicy otrzymają i przejrzą: Zestaw narzędzi do rezolucji 2025 Język rezolucji Zestaw narzędzi prasowych Rzecznictwo mówi…

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Młoda opiekunka opowiada o znalezieniu wsparcia w trakcie podróży z FTD w podcaście Dementia UK

Young Caregiver Talks About Finding Support Amid FTD Journey on Dementia UK Podcast

A young FTD caregiver named Lizzie discussed the grief, uncertainty, and unexpected responsibilities she faced as she cared for her father — all while navigating the natural changes of young adulthood — in a recent interview with “My Life With Dementia,” a podcast produced by the organization Dementia UK. When Lizzie graduated from college, she…

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