Delaware Passes Resolution Recognizing FTD Awareness Week 2024
Delaware became the third state to officially recognize FTD Awareness Week 2024 (September 22-29) after its Senate unanimously passed the resolution SR23 on June 27. State Senator Kyra Hoffner sponsored and introduced the resolution to the legislative chamber, citing the story of Jeanne Cestone, one of her constituents. Ms. Cestone, who was present for the…
Read MoreAdvocacy Update: Join AFTD in Advocating for FTD Awareness Week in All 50 States
This past May, AFTD staff and other FTD advocates traveled to New York and California to celebrate the successful passing of their respective resolutions that commemorate September 22-29 as FTD Awareness Week. Now, we need your help to support FTD Awareness Week in every state! What Is the Difference between a Proclamation and Resolution? Awareness…
Read MoreStudy Explores Racial Differences in Clinical Presentation of FTD Symptoms, Disease Severity
A study published in JAMA Neurology explores whether FTD symptoms present differently based on the race of the person diagnosed. Previous studies have sought to compare neuropsychiatric symptoms in Black/African American and White individuals — though, as the authors point out, this research has either been related to Alzheimer’s disease or was a part of…
Read MoreDementia Friendly Lancaster Teepa Snow Event
AFTD volunteers Samantha Fuller and Frank Alvarez are hosting an information table at the Dementia Friendly Lancaster Workshop on August 21, 2024, from 8 AM – 4 PM, EST. Hosted by occupational therapist Teepa Snow, the workshop will provide attendees with a better understanding of what people with dementia are going through, how care partners and persons…
Read MoreCaring for Carol by Caring for Me
In Caring for Carol by Caring for Me, Anthony P. Mauro Sr. recounts the emotional journey of caring for his wife, Carol, through her battle with FTD. The memoir highlights the couple’s struggles with misdiagnosis, the profound losses brought on by this unique type of dementia, and Anthony’s personal growth in embracing life’s inevitable sorrows. This…
Read MoreAFTD Webinar: FTD and ALS — A Collaborative Approach to Diagnosis and Care
We know of several genes that can cause hereditary FTD, ALS, and ALS with FTD, with C9orf72 the most common. Yet genetics is not the complete story, as these conditions can appear without a known genetic cause. In this AFTD Healthcare Professional Webinar, neurologists from Massachusetts General Hospital who specialize in FTD and ALS discuss…
Read MoreAdvancing Hope: AFTD-ADDF Partnership Announces New Award in Drug Discovery Program
AFTD has partnered with the Alzheimer’s Drug Discovery Foundation (ADDF) since 2007 to support preclinical research on promising new drugs through the Accelerating Drug Discovery for FTD program. We are proud to announce Jeffrey Rothstein, MD, PhD, a professor of neurology and director of the Robert Packard Center for ALS Research at Johns Hopkins University,…
Read MoreViewpoints of FTD – Brain Donation
While there is currently no cure or approved treatments for FTD, increasing numbers of diagnostic tools and experimental treatments are entering the clinical trial phase of their development. A major contributor to this progress is the growing number of people diagnosed with FTD participating in research, including through brain donation. Not only does a donation…
Read MoreBringing Hope & Light to the Dementia Journey
AFTD volunteer Joni Ralph is hosting an event table at Bringing Hope & Light to the Dementia Journey at UW Stevens Point on August 6, 2024. The full day education conference provides insights for care partners, professionals, and people living with FTD and other dementias.
Read MoreAFTD Volunteer Receives “Visionary of the Year 2024” Award for 40 Years of Advocacy
AFTD volunteer Wanda Smith received Alzheimer’s San Diego’s Visionary of the Year 2024 award for her FTD advocacy and awareness-raising efforts, which date back to the 1980s. Smith’s journey began when her mother, Sara Bridges, started to experience difficulties at work. Suspecting Alzheimer’s, Smith turned to Dr. Robert Katzman, MD, of the nearby University of…
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