Research Partnership Leads Study Exploring the Analytic Performance of Lab Test for Neurodegeneration
AFTD’s Director of Research & Grants, Nicole Bjorklund, PhD, and Medical Advisory Council member Tania Gendron, PhD, contributed to a study that analyzes the ability of five assays to capture levels of the protein neurofilament light, a biomarker for damage associated with neurodegenerative diseases like FTD and ALS. The study found that the most widely…
Read MoreDear HelpLine: Primary Progressive Aphasia (PPA) Subtypes
Dear HelpLine, My mother was diagnosed with PPA and I see that there are many different types. How do I know what type she has? How does PPA fit into the FTD disorders? FTD diagnoses predominantly associated with the initial gradual loss of the ability to speak, read, write, or understand what others are saying…
Read More2026 Bonnie Brae Classic
Tee up for a day of golf, camaraderie, and fun at the Bonnie Brae Classic with Zach Fenoglio and friends at Red Hawk Ridge Golf Club in Castle Rock, CO, on Saturday, June 20! The event kicks off with an 8:00 AM shotgun start, followed by lunch, a silent auction, and a raffle. Proceeds will…
Read MoreAwty International School’s 4th Annual AFTD Basketball Student vs Faculty Game
Amar Sharma and the Awty International School are hosting the 4th Annual basketball fundraiser on April 10, 2026. High school students will form teams of 5-6 players to compete in a basketball tournament. The champions will then play a team of faculty members for a grand prize. Learn more or donate to the fundraiser by visiting their GoFundMe Pro page.
Read More10 Annual Crusade for a Cure Golf Tournament
AFTD Ambassador Deb Scharper will host the 10th Annual Crusade for a Cure Golf Tournament on September 5, 2026, with proceeds benefiting AFTD’s Research Initiatives. The tournament (tee time at 9 AM CT) will be held at Sunny Brae Golf Course (Osage, IA) and will feature a two-person best-shot format over 18 holes, four hole-in-one opportunities, plus mulligan and fairway games. There will…
Read MoreGenetic FTD: Practical Referral Pathways for Community Providers
If you are wondering if genetics might be relevant, it is. Frontotemporal degeneration (FTD) presents numerous unique diagnostic and care challenges. As our understanding of genetic FTD expands, genetics and genetic counseling have become increasingly integral to comprehensive care, yet many providers are unsure if, when, or even how to refer people to genetic services.…
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