Advancing Hope: AFTD Research Attends First FTD Gordon Research Conference
Two invested FTD researchers, Dr. Fen Biao-Gao from the University of Massachusetts, and Dr. Aimee Kao from the University of California, San Francisco, recently organized the first Gordon Research Conference focused on FTD, held in February. Gordon Research Conferences are unique in that they are typically small, ~200 participants, to encourage lively discussions and many…
Read MoreTen Years of Hope: Hope Rising Marks a Decade, Raises more than $2.1 Million, and Celebrates the Impact of Emma and Bruce Willis on FTD Visibility, Education, and Advocacy
The Ziegfeld Ballroom became a beacon of hope on Thursday, March 12, as The Association for Frontotemporal Degeneration (AFTD) gathered nearly 500 to attend the tenth annual Hope Rising Benefit—an evening that generated $2.1 million in critical funding for FTD awareness, care advancement, and treatment research. At the heart of the milestone celebration was the presentation of the Susan Newhouse & Si Newhouse Award of Hope to Emma Heming Willis and Bruce…
Read MoreCommunity Connection: Running Through It—Mike Brucklier’s Marathon Journey
Mike Brucklier celebrated his 50th birthday on a Zoom call at 8:09 in the morning. By the end of the conversation, he’d be telling a stranger about the disease that claimed his father in 1996, his brother, CJ, in January 2026, and continues to affect his family as other relatives are living with FTD. It’s…
Read More2025 Driving Hope for FTD Rare Bourbon and Scotch Holiday Auction
AFTD Board of Directors Alumni, Michael Stowell and Brian Rose, are hosting the 2025 Driving Hope for FTD Rare Bourbon and Scotch Holiday Auction with proceeds to benefit AFTD’s mission. There’s two ways to get involved in this event, an in-person tasting on December 6th, and an online auction going on right now! Online Auction:…
Read MoreAFTD Webinar: Introduction to Frontotemporal Dementia (FTD) Biomarkers
Join AFTD, the FTD Disorders Registry, and Dr. Charlotte Teunissen, professor of neurochemistry at Amsterdam University Medical Center, for a webinar on the basics of biomarkers. This webinar aims to provide people directly impacted by FTD with a foundational understanding of biomarkers and their relationship to FTD. The presentation will cover biomarkers and their significance…
Read MoreDear HelpLine: The Caregiver Mind
Dear HelpLine, I often feel like my mind is spinning with all of the things I need to do in caring for my wife with FTD. How can I make sense of all of this and find help? At AFTD’s 2025 Education Conference, keynote speaker, Katie Brandt, shared her vision of the “caregiver mind”- pulled…
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