Webinar: Understanding Frontotemporal Degeneration
Join AFTD Ambassador Dawn O’Gara on April 12 as she talks about FTD — the most common form of dementia for people under the age of 60. Dawn will break down the general causes and symptoms along with offering resources for how you can help loved ones with FTD. Click here to register. This webinar…
Read MoreBritish Study Finds Evidence for Pre-Diagnostic Cognitive Impairment in People with Neurodegenerative Diseases
A study published in the Alzheimer’s & Dementia medical journal found evidence of cognitive impairment in people diagnosed with a neurodegenerative disease like FTD years before an official diagnosis is made. Researchers are starting to discover that features of FTD disorders are detectable at earlier stages in disease progression, as in a recent study which…
Read MoreThe Lived Experience: Brain Donation
By Cindy Odell I was diagnosed with bvFTD more than ten years ago. My immediate reaction was one of shock even after considering that two of my relatives were currently dealing with dementia, and many had already died from it. The second reaction, the one that has stayed with me was, “this has to end!…
Read MoreGuest Feature: “Until We Knew, Twice: Life With MND/ALS and FTD” Shares a Story of Love and Grief on the FTD Journey
The FTD journey can be an isolating experience; it can often feel like nobody knows what you are going through. For Swedish author Elisabet O. Klint, whose late husband Mats was diagnosed with ALS with FTD, the journey was isolating because Mats’ FTD wasn’t properly addressed. “The ALS was really well looked after medically,” said…
Read MorePerspectives in FTD Research Webinar: Brain Donations — Who, What, Where, When, and Why?
In this Perspectives in Research Webinar, presented jointly by AFTD and the FTD Disorders Registry, Dr. David Irwin and Dr. Lauren Massimo of the University of Pennsylvania join other experts to answer these questions and more. They also explain how brain donation helps move FTD research forward, and guide you through the donation process. This…
Read MoreMarch’s Athlete of the Month: Lynne Lewis
Our Charity Miles Athlete of the Month for March is Lynne Lewis from Pennsylvania. Lynne uses the Charity Miles app in memory of her husband, Glenn. He was an avid runner throughout his life, so Lynne views her use of the Charity Miles app as a “fitting tribute to him.” Lynne picked up on change…
Read MoreAdvocacy Update: AFTD Ambassador Corey Esannason Meets with Staff from State Senator Andrea Stewart-Cousins’ Office
On March 3 AFTD Ambassador Corey Esannason met with staff from New York State Senator Andrea Stewart-Cousins’ office. Corey was inspired to arrange the visit after attending the New York Alzheimer’s Impact Movement (AIM) chapter’s state policy meeting. The term Alzheimer’s disease and related dementias, or ADRD, is often used in legislation and policy as a…
Read MoreAdvocates Raise $1.8 Million+ in Fight Against Young-Onset Dementia at AFTD’s Hope Rising Benefit
More than 400 supporters joined together at AFTD’s seventh annual Hope Rising Benefit in New York City on Tuesday. This year’s charity gala – chaired by Donald Newhouse and co-chaired by Anna Wintour and David Zaslav – raised more than $1.8 million in support of the organization’s critical work to support people affected by FTD,…
Read MoreAnnual AFTD Hope Rising Benefit Raises Crucial Funds for Fight Against FTD
(L-R: Hope Rising Benefit Co-Chair David Zaslav, AFTD CEO Susan L-J Dickinson, AFTD Board member Kristin Holloway, Emma Heming Willis, AFTD Board members Donald E. Newhouse and Rita B. Choula, Hope Rising Benefit Co-Chair Anna Wintour, AFTD Board member Kathy Mele) More than 400 supporters joined together at AFTD’s seventh annual Hope Rising Benefit in…
Read MoreStudy Highlights Importance in Differentiating Varying Types of Disinhibition in bvFTD
A study published in the medical journal Cortex highlights the importance of differentiating between the various types of disinhibition in bvFTD. The study was conducted by Lara Migliaccio and Bénédicte Batrancourt of the FrontLab team at the Paris Brain Institute. For the study, the researchers recruited 23 participants with bvFTD and 24 control participants from…
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