May 31: Aging Unbound Fair
AFTD will be hosting an information table at the Aging Unbound Fair on May 31 in Burke, Virginia, near Washington, DC. Additionally, AFTD volunteer Sarah Beil will speak about how AFTD helped walk her through her father’s journey with FTD.’ Download this flyer to learn more. Contact Ndidi Uzowihe (nuzowihe@arlingtonva.us) or Delores Clearfield (dathey@capitalcitynurses.com) for…
Read MoreAging Unbound Fair
AFTD will be hosting an information table at the Aging Unbound Fair on May 31 in Burke, Virginia, near Washington, DC. Additionally, AFTD volunteer Sarah Beil will speak about how AFTD helped walk her through her father’s journey with FTD.’ Download this flyer to learn more. Contact Ndidi Uzowihe (nuzowihe@arlingtonva.us) or Delores Clearfield (dathey@capitalcitynurses.com) for…
Read MoreAFTD and ALS Association Launch Funding Opportunity for Digital Tool Development in ALS and Frontotemporal Dementia
AFTD and The ALS Association are launching a funding opportunity to support collaborative development of digital assessment tools across two overlapping neurodegenerative disorders: frontotemporal degeneration (FTD) and amyotrophic lateral sclerosis (ALS). Leveraging a $500,000 ALS Association Partnership Grant, the Digital Assessment Tools for FTD and ALS Awards will provide $750,000, distributed across two to four…
Read MoreJune 1: In-Person Meet & Greet in Fredericksburg, VA
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Fredericksburg, Virginia on June 1, starting at 5 p.m. Download this flyer to learn more, and share it with others who would benefit from this event. Event host KC McCullough is an AFTD volunteer who lost…
Read MoreFredericksburg, VA — In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Fredericksburg, Virginia. Download this flyer to learn more, and share it with others who would benefit from this event. Event host KC McCullough is an AFTD volunteer who lost his wife, Hope, to FTD last year.…
Read MoreResearchers Review Efficacy of Cognitive Exams in Recent Study
Researchers set out to evaluate the efficacy of three prominent cognitive exams used to screen people for FTD and other dementias in a recent study published in the medical journal Alzheimer’s & Dementia. The study authors reviewed literature examining three “second-tier” cognitive exams to gauge their effectiveness, evaluating the Mini-Mental State Examination (MMSE), the Montreal…
Read MoreHelp & Support: What Should You Bring to a Doctor’s Appointment?
Going to any medical appointment can be overwhelming, from the stress of getting there on time to worries about being able to ask your questions and share your concerns. The pressure can be especially acute when going to a first appointment to see a new provider. Sometimes, you may arrive at the appointment fully prepared…
Read MoreAFTD and Alector Discuss FTD Therapeutic Development
AFTD recently spoke with Alector Chief Medical Officer Gary Romano, MD, PhD, about his colleagues’ work to develop an approved therapeutic to treat FTD and his hopes for the future of therapeutic development. Responses have been edited for clarity and length. Can you share some background on Alector’s approach to developing an FTD-focused therapeutic? Alector’s…
Read MoreGuest Feature: The Lived Experience of Twins on the FTD Journey
The FTD journey can drum up powerful emotions for people with a diagnosis and their families, from shock and sadness to more complex emotions like ambiguous loss. For Elaine Zeitlin, whose identical twin Judy passed away late last year after a 10-year FTD journey, it felt as if she was slowly watching an integral part…
Read MoreUSC-Led Studies Identify Targetable Proteins and Drug Compounds That May Be Effective in Treating ALS
A pair of studies by the University of Southern California (USC) Stem Cell program identified two proteins that could serve as targets for treating amyotrophic lateral sclerosis (ALS) and drugs that could be used in treatment. The studies were led by Justin Ichida, PhD, the head of USC’s Ichida lab, and a 2016 Accelerating Drug…
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