Wave Life Sciences Ends FTD/ALS Trial of WVE-004
Yesterday, Wave Life Sciences announced that it ended its FOCUS-C9 clinical trial for the drug WVE-004, which was being evaluated as a potential treatment for FTD and amyotrophic lateral sclerosis (ALS) cases associated with a variation in the gene C9orf72, the most common genetic cause of FTD. Despite this news, AFTD applauds Wave Life Science…
Read MoreAdvancing Hope: Major Leaders in FTD and ALS Research Gather in Arizona for Summit on C9orf72 Gene
In March, prominent leaders in FTD and ALS research gathered in Scottsdale, Arizona, for the first-ever summit on the C9orf72 gene, variations of which constitute the most common cause of genetic FTD and ALS. The event was supported by generous funding from David and Weezie Reese and was hosted by the Barrow Neurological Foundation. The…
Read MoreFTD Can Produce a Creative Spark in Some, Study Finds
Brain atrophy patterns specific to FTD can let loose previously suppressed creative abilities in some people diagnosed with the disease, according to a study published earlier this year in JAMA Neurology. The phenomenon has been studied by researchers for over 20 years, including prominent FTD researchers such as Bruce Miller, MD, a distinguished professor at…
Read More“What Do People with PPA Want from Speech-Language Therapy?” Recent Study Asks
A study published in the International Journal of Language and Communication Disorders explores the needs of people affected by primary progressive aphasia (PPA) and how speech-language therapy (SLT) can be better tailored to help them. While there are currently no approved disease-modifying treatments for PPA, the study highlights how non-medicinal approaches like SLT can make…
Read MoreMay’s Athlete of the Month: Dane Sundseth
AFTD’s May Charity Miles Athlete of the Month is Dane Sundseth from Southern California! After a friend of his family member was diagnosed with FTD, Dane made a choice to support his friend and their family through Charity Miles. Between Dane’s dedication to his friend, his commitment to supporting charities, and his passion for running…
Read MoreMay 25: 2023 Woodland Senior Resource Fair
AFTD volunteer Debby Scanlan will be representing AFTD at the 2023 Woodland Senior Resource Fair in Woodland, California. She will be hosting an information table to bring awareness of FTD to the local senior community. The event will take place at the Woodland Community & Senior Center at 2001 East Street in Woodland. Click here…
Read More2023 Woodland Senior Resource Fair
AFTD volunteer Debby Scanlan will be representing AFTD at the 2023 Woodland Senior Resource Fair in Woodland, California. She will be hosting an information table to bring awareness of FTD to the local senior community. Click here to learn more.
Read MoreMay 31: Aging Unbound Fair
AFTD will be hosting an information table at the Aging Unbound Fair on May 31 in Burke, Virginia, near Washington, DC. Additionally, AFTD volunteer Sarah Beil will speak about how AFTD helped walk her through her father’s journey with FTD.’ Download this flyer to learn more. Contact Ndidi Uzowihe (nuzowihe@arlingtonva.us) or Delores Clearfield (dathey@capitalcitynurses.com) for…
Read MoreAging Unbound Fair
AFTD will be hosting an information table at the Aging Unbound Fair on May 31 in Burke, Virginia, near Washington, DC. Additionally, AFTD volunteer Sarah Beil will speak about how AFTD helped walk her through her father’s journey with FTD.’ Download this flyer to learn more. Contact Ndidi Uzowihe (nuzowihe@arlingtonva.us) or Delores Clearfield (dathey@capitalcitynurses.com) for…
Read MoreAFTD and ALS Association Launch Funding Opportunity for Digital Tool Development in ALS and Frontotemporal Dementia
AFTD and The ALS Association are launching a funding opportunity to support collaborative development of digital assessment tools across two overlapping neurodegenerative disorders: frontotemporal degeneration (FTD) and amyotrophic lateral sclerosis (ALS). Leveraging a $500,000 ALS Association Partnership Grant, the Digital Assessment Tools for FTD and ALS Awards will provide $750,000, distributed across two to four…
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