Wall Street Journal Article Shares Story of Doctor’s Five Years of FTD Uncertainty
An article published in the Wall Street Journal shares the difficult journey former gynecologist Dr. Seth L. Stern faced in seeking a diagnosis for FTD, highlighting the many obstacles to diagnosis that people with FTD often face. Dr. Stern first began noticing signs that something was wrong in 2017; he experienced difficulties finding the right…
Read MoreHelp & Support: Genetic Testing and DNA Banking
The decision to undergo genetic testing for FTD is deeply personal. Many want to know their genetic status to aid in family and financial planning, or to determine if they can participate in studies testing experimental FTD treatments focused on specific genes. Some people do not wish to know if they have a genetic form…
Read More34th Annual Southern California Alzheimer’s Disease Research Conference
AFTD is a Gold sponsor of the 34th annual Southern California Alzheimer’s Disease Research Conference, taking place in Irvine, California and online on Friday, August 25. This hybrid conference will cover a wide range of topics on sex and gender in dementia research and caregiving. Additionally, AFTD volunteer Kim Bailey will be staffing an AFTD…
Read More34th Annual Southern California Alzheimer’s Disease Research Conference
AFTD is a Gold sponsor of the 34th annual Southern California Alzheimer’s Disease Research Conference, taking place in Irvine, California and online on Friday, August 25. This hybrid conference will cover a wide range of topics on sex and gender in dementia research and caregiving. Additionally, AFTD volunteer Kim Bailey will be staffing an AFTD…
Read MoreStriking a Balance Caregiver Conference
AFTD Ambassador Susan Eissler will be representing AFTD at the 22nd annual Striking a Balance Caregiver Conference in Austin, Texas. Hosted by AGE of Central Texas and the Area Agency on Aging of the Capital Area, this annual event is the largest, longest-run free caregiver conference in Central Texas. Susan will be staffing an AFTD…
Read MoreStriking a Balance Caregiver Conference
AFTD Ambassador Susan Eissler will be representing AFTD at the 22nd annual Striking a Balance Caregiver Conference in Austin, Texas. Hosted by AGE of Central Texas and the Area Agency on Aging of the Capital Area, this annual event is the largest, longest-run free caregiver conference in Central Texas. Susan will be staffing an AFTD…
Read MoreAugust 26: In-Person Meet & Greet in Paris, IL
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Paris, Illinois on August 26, starting at 1 p.m. CT. Download this flyer to learn more, and share it with others who would benefit from this event. Event host Dawn Kirby is an AFTD Ambassador from…
Read MoreParis, IL – In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Paris, Illinois on August 26, starting at 1 p.m. CT. Download this flyer to learn more, and share it with others who would benefit from this event. Event host Dawn Kirby is an AFTD Ambassador from…
Read MoreThe Lived Experience of FTD: Tracking Changing Behaviors in FTD
For people living with an FTD diagnosis and their care partners, keeping track of the changing behaviors caused by the disease’s symptoms can be challenging. Kevin Rhodes of the Persons with FTD Advisory Council and his wife have shared some of the tools and methods they use to track the changing behaviors that can be…
Read MoreOne-Night Performance of Acclaimed Play UnRavelled Examines Art, Science, and Dementia
AFTD staff and Board members attended a performance of the play UnRavelled at the San Francisco Conservatory of Music on July 21. AFTD sponsored the play to raise FTD awareness and elevate the stories and perspectives of our resilient community. Written by Jake Broder, an Atlantic Fellow at the Global Brain Health Institute, UnRavelled examines…
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