Striking a Balance Caregiver Conference
AFTD Ambassador Susan Eissler will be representing AFTD at the 22nd annual Striking a Balance Caregiver Conference in Austin, Texas. Hosted by AGE of Central Texas and the Area Agency on Aging of the Capital Area, this annual event is the largest, longest-run free caregiver conference in Central Texas. Susan will be staffing an AFTD…
Read MoreStriking a Balance Caregiver Conference
AFTD Ambassador Susan Eissler will be representing AFTD at the 22nd annual Striking a Balance Caregiver Conference in Austin, Texas. Hosted by AGE of Central Texas and the Area Agency on Aging of the Capital Area, this annual event is the largest, longest-run free caregiver conference in Central Texas. Susan will be staffing an AFTD…
Read MoreAugust 26: In-Person Meet & Greet in Paris, IL
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Paris, Illinois on August 26, starting at 1 p.m. CT. Download this flyer to learn more, and share it with others who would benefit from this event. Event host Dawn Kirby is an AFTD Ambassador from…
Read MoreParis, IL – In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Paris, Illinois on August 26, starting at 1 p.m. CT. Download this flyer to learn more, and share it with others who would benefit from this event. Event host Dawn Kirby is an AFTD Ambassador from…
Read MoreThe Lived Experience of FTD: Tracking Changing Behaviors in FTD
For people living with an FTD diagnosis and their care partners, keeping track of the changing behaviors caused by the disease’s symptoms can be challenging. Kevin Rhodes of the Persons with FTD Advisory Council and his wife have shared some of the tools and methods they use to track the changing behaviors that can be…
Read MoreOne-Night Performance of Acclaimed Play UnRavelled Examines Art, Science, and Dementia
AFTD staff and Board members attended a performance of the play UnRavelled at the San Francisco Conservatory of Music on July 21. AFTD sponsored the play to raise FTD awareness and elevate the stories and perspectives of our resilient community. Written by Jake Broder, an Atlantic Fellow at the Global Brain Health Institute, UnRavelled examines…
Read MoreNew York Times Magazine Chronicles a Family Living with the Threat of Genetic FTD
The cover story of the July 23 issue of the New York Times Magazine chronicles the experiences of a family that has lived with the threat of inheriting genetic FTD for generations. The article’s author, Robert Kolker, consulted with members of AFTD’s staff for insight into FTD: CEO Susan L-J Dickinson, MSGC Director of Research…
Read MoreGuest Feature: Filmmaker and FTD Caregiver Shares Story of Love and Connection in “Pedacito de Carne”
Living with FTD can be exhausting, challenging, and at times deeply upsetting for people with a diagnosis, care partners, and family members. Yet, despite the many obstacles created by FTD, there can still be instances of connection, joy, and laughter between people diagnosed and their loved ones. “There are moments where I was at my…
Read More“Motivated by Love, Driven by Anger” – News Report Highlights Advocacy Efforts of Milwaukee Couple on FTD Journey
A June 30 report by the Milwaukee news station TMJ4 highlighted the advocacy efforts of church administrator and care partner Larry Gnatzig and his husband Jeff Tucker, who was diagnosed with FTD, and shared the experiences of their FTD journey so far. Gnatzig first met Tucker online in 1996, meeting in person after six months…
Read MoreAFTD and AviadoBio Discuss Therapeutic Treatment Protocols for FTD
AFTD recently spoke with AviadoBio Chief Executive Officer Lisa Deschamps about her colleagues’ work to develop a therapeutic and treatment protocol targeting FTD. *Responses have been edited for clarity and length. Can you share some background on AviadoBio’s approach to developing an FTD-focused therapeutic? We are a drug and delivery company focused on addressing…
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