Aphasia Awareness Month: Resources and Guidance for Managing Primary Progressive Aphasia
June is Aphasia Awareness Month, bringing awareness of language-based disorders to people around the U.S. While many Americans have not heard of aphasia, even fewer know about primary progressive aphasia (PPA), an FTD disorder characterized by the loss of one’s ability to speak, read, write, and/or understand what others are saying. Because PPA isn’t well…
Read More8th Annual CWM Memorial Golf Outing
The 8th Annual CWM Memorial Golf Outing will be held on July 15, 2023 at the Yankee Springs Golf Course in Wayland, MI. The event is in memory of Carl Moretti, who passed away from FTD in 2015 and will feature an 18 hole shotgun start, four person scramble format, award for best dressed, closest…
Read MoreWatch Recordings from AFTD’s 2023 Education Conference
AFTD held its 2023 Education Conference on May 5, both in person in St. Louis and virtually. You can watch all of the recorded conference sessions by visiting this YouTube playlist. You can also view conference sessions individually by following the links below. Opening Remarks & Introduction Presenters: AFTD Senior Director of Programs Sharon Denny,…
Read MoreAdvocacy Update: AFTD Meets with NY State Senator Michelle Hinchey for FTD Week Announcement
AFTD staff and volunteers traveled to Albany on May 22 to meet with New York State Senator Michelle Hinchey as she recalled Senate Resolution 992 declaring September 24 – October 1 as FTD Awareness Week in New York and spoke to the importance of greater awareness and understanding of FTD. AFTD CEO Susan L-J Dickinson and…
Read MoreAFTD’s 2023 Driving Hope Golf Tournament (CO)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive course, and spread FTD awareness by joining AFTD’s 2023 Driving Hope Golf Tournament on August 13th at the Colorado National Golf Club in Erie, CO! Tickets are available for foursomes and dinner/drinks only guests. There are also multiple sponsorship opportunities to support…
Read MoreAdvancing Hope: AFTD announces recipients of 2022 Pilot Grants
AFTD Pilot Grants provide critical support for FTD investigators who have completed their training and are in the early stages of establishing an independent research career. Receiving a Pilot Grant can also lay the foundation for a lasting relationship with AFTD, with today’s awardees becoming tomorrow’s advisors, reviewers, and speakers at AFTD-hosted events. AFTD is…
Read MoreHelp & Support: AFTD Quality of Life Grants Now Provide Better Benefits to People with FTD
AFTD’s Comstock Grant program, which offers modest financial assistance to people with FTD and their care partners, has benefited hundreds of families through its Respite Grants, Travel Grants, and Quality of Life Grants, which AFTD introduced in 2017. Six years later, we are introducing changes designed to streamline the delivery of Quality of Life Grants –…
Read MorePeople with Non-English First Language Have Delayed bvFTD Symptom Onset, Study Shows
Researchers at the University of Sydney discovered that Australians born overseas who spoke a first language other than English could tolerate neurodegeneration longer before behavioral variant FTD (bvFTD) symptoms begin to show, according to a study published in the Journal of Neurology. “Our findings suggest that current diagnostic methods might be less accurate at identifying…
Read MoreNation’s Leading Frontotemporal Dementia Organization Adds Four Board Members to Help Further Its Mission
The Association for Frontotemporal Degeneration (AFTD) has welcomed four additions to its Board of Directors, further bolstering its commitment to supporting a community of people diagnosed with frontotemporal degeneration (FTD), their care partners, healthcare professionals, and FTD researchers. FTD is the most common dementia for people under age 60, and is best known for being…
Read More“I Vowed to Take Care of Him; Then He Filed for Divorce” – Article Shares Woman’s Tumultuous FTD Journey
In a recent article published on the website The Cut, author Katherine Nichols shares the tumultuous FTD journey that followed her husband’s diagnosis. When their relationship began, Nichols and her husband “E.” had an idyllic marriage that she characterized as a “true partnership.” “He welcomed and treated my children as his own,” Nichols said. “We…
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