Monthly Care Partner Training: Frontotemporal Dementia
AFTD Director of Support & Education Esther Kane, MSN, RN-CDP, will be speaking about FTD at the September edition of Insight Memory Care Center’s Monthly Care Partner Training series. Visit the Insight Memory Care Center’s website to register for this free hybrid event: Limited in-person attendance is available, or you can join virtually via Zoom.
Read MoreWorld FTD Awareness Week 2023
World FTD United, an international coalition of FTD-focused organizations, wants to show the world how a dedicated global community can rally together for action, ensure that no one faces FTD alone, raise greater awareness, and advance research during World FTD Awareness Week 2023 (Sept. 24 – Oct. 1). If you want to get a head…
Read MoreFood for Thought 2023
Food for Thought is a grassroots fundraising and awareness campaign focusing on food and FTD education. Held September 24-October 8, 2023, Food for Thought encompasses World FTD Awareness Week. During this time, people across the world “Take Time with Friends and Family. Take Action.” Food for Thought hosts tell their stories, making people personally aware…
Read MoreAFTD Ambassador Emphasizes Need for Better Dementia Care in Podcast
Melissa Fisher, AFTD Ambassador and a senior strategic marketing consultant at Kaiser Permanente Northwest, shared the realities of being an FTD care partner while emphasizing emphasized the need for better dementia care pathways in an episode of VIE Healthcare’s podcast. Caregiving is difficult; most family care partners are unpaid, untrained, and often overwhelmed. Yet, care…
Read MoreAFTD and Passage Bio Discuss Therapeutics Designed for FTD-GRN
AFTD recently spoke with Passage Bio Chief Executive Officer William Chou, M.D., about his colleagues’ work to develop an effective therapeutic designed to treat FTD-GRN. *Responses have been edited for clarity and length. Can you share some background on Passage Bio’s approach to developing an FTD-focused therapeutic? As we know, there are some forms…
Read MoreGuest Feature: My Ohana – Reflecting on The Close Bonds We Build on the FTD Journey
FTD symptoms and the stigma attached can make navigating the disease an isolating experience for people diagnosed, care partners, and family. Support groups are a common way for people on the FTD journey to connect with others and share their experiences. However, as AFTD Ambassador for Oregon Melissa Fisher shares, connecting with people through these…
Read MoreSchizophrenia Drug Reduces Tau Protein Aggregation in Cell and Mouse Models, Study Finds
Amisulpride, an antipsychotic drug, is capable of reducing aggregation of the tau protein in cell and mouse models, according to a study published earlier this year. While the drug could be a potential disease-modifying treatment for tau-based FTD, further trials with human participants are necessary. Tau is one of a few proteins that can accumulate…
Read MoreDuke Caregiver Community Event — September 7, 2023
AFTD Ambassador Jerry Lazarus and former AFTD Board member and support group facilitator Paul Lester will be hosting an AFTD exhibitor table at the Duke Caregiver Community Event in Durham, North Carolina. This in-person event offers insights from experts, and ways to connect caregivers to essential services and support systems. The Duke Caregiver Community Event…
Read MoreDuke Caregiver Community Event
AFTD Ambassador Jerry Lazarus and former AFTD Board member and support group facilitator Paul Lester will be hosting an AFTD exhibitor table at the Duke Caregiver Community Event in Durham, North Carolina. This in-person event offers insights from experts, and ways to connect caregivers to essential services and support systems.
Read MoreAdvancing Hope: AFTD’s Director of Research Engagement Attends Cure VCP Conference
Shana Dodge, PhD, AFTD’s Director of Research Engagement, spoke at the 2023 Cure VCP Connections Conference, held July 20-22 in Las Vegas. VCP disease, also called VCP-associated multisystem proteinopathy or inclusion body myopathy with early-onset Paget disease and frontotemporal dementia (IBMPFD), is a genetic disease that can affect the muscles, bones, nerves, and brain. Approximately…
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