Start World FTD Awareness Week 2023 Off with Steps Towards Self-Care
Today is the start of World FTD Awareness Week 2023 – a global week of action to #endFTD. All week, we’ll be sharing different actions you can take to show the world you care. The theme for today is self-care. Taking steps to support your own health is important whether you’re a caregiver, someone carrying…
Read MoreOctober 13: 12th Annual Caregivers Conference in Richland, WA
AFTD volunteer Cheryl Garvey will be sharing FTD educational and awareness materials at the 12th Annual Caregivers Conference at the Richland Community Center in Washington State, taking place on October 13 from 10 a.m. to 4:15 p.m. Author, motivational speaker, and former dementia caregiver Loretta Woodward Veney will be the event’s featured presenter. Download this…
Read More12th Annual Caregiver Conference
AFTD volunteer Cheryl Garvey will be sharing FTD educational and awareness materials at the 12th Annual Caregiver Conference at the Richland Community Center in Washington State. Author, motivational speaker, and former dementia caregiver Loretta Woodward Veney will be the event’s featured presenter. Download this informational flyer to learn more. You can register for this free,…
Read MoreNew Jersey Sisters Share Mother’s FTD Journey, Which Inspired a Short Film, with NJ.com
Sisters Diana and Sandra Gonzalez-Morett shared how their family’s experience with FTD inspired the creation of the short film Pedacito de Carne in an August 31 article published on NJ.com. Diana and Sandra’s mother, Diana Morett, first began showing FTD symptoms in 2015. The sisters describe their mother as a generous, charming, and mischievous woman…
Read MoreOctober 5: Virtual Meet & Greet for Syracuse, New York Area
AFTD Volunteer Molly Secrest is interested in helping to bring FTD awareness and resources to the Syracuse, New York area. More information about an upcoming new virtual support group in Syracuse will be offered at the Meet & Greet, which will take place on Thursday, October 5 beginning at 6:30 p.m. ET. To RSVP and…
Read MoreVirtual Meet & Greet for Syracuse, New York Area
AFTD Volunteer Molly Secrest is interested in helping to bring FTD awareness and resources to the Syracuse, New York area. More information about an upcoming new virtual support group in Syracuse will be offered at the Meet & Greet, which will take place on Thursday, October 5 beginning at 6:30 p.m. ET. To RSVP and…
Read MoreVolunteer Update: Take an Active Role in Advancing FTD Science by Participating in Research
FTD science has come far in the 21 years since AFTD began its mission, with scientists closer than ever to breakthroughs that could bring meaningful change to families facing the disease. But progress is only possible through the participation of those diagnosed with FTD, their care partners, and their family members. Clinical trials, which evaluate…
Read MoreAFTD Healthcare Professional Education Webinar: Grief, Loss, and Hope: –Helping Families Living with FTD
FTD is the most common dementia for people under 60, and often occurs when there are teens or young adults still at home. An FTD diagnosis can bring feelings of immense grief and loss as families’ lives are dramatically altered. This AFTD Healthcare Professional Education webinar will offer a greater understanding of FTD’s unique emotional…
Read MoreAFTD Educational Webinar: Answering Questions and Providing Support — A Q&A with AFTD HelpLine Staff
Understanding and managing FTD can be overwhelming for those living with a diagnosis, their care partners, and healthcare professionals. The AFTD HelpLine is here to provide support. Last year, HelpLine staff connected more than 3,000 people with essential information, resources that aid in managing the disease, and ways to find further assistance. In this AFTD…
Read MoreAFTD Grant Recipient Evaluates Efficacy of Remote Support Program for Dementia Caregivers Newly Adapted for FTD
A pilot study published in the medical journal Aging & Mental Health evaluates the efficacy of a STELLA-FTD, a remote support program tailored to the needs of families affected by FTD. Principal investigator Allison Lindauer, PhD, of Oregon Health & Science University (OHSU), received an AFTD Pilot Grant for the study in 2020. The stress…
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