Jersey City, New Jersey, Meet & Greet
AFTD Ambassador Sandra Gonzalez-Morett and Volunteer Veronica Wolfe will be hosting a Meet & Greet at Hudson Hall in Jersey City. Join Sandra, Veronica, and others with lived experience of FTD to share stories, trade insights, and share hope. To RSVP, please contact Sandra Gonzalez-Morett by clicking here or Veronica Wolfe by clicking here.
Read MoreThe Lived Experience of FTD: Anosognosia
The following article was written by Kevin Rhodes, a member of AFTD’s Persons with FTD Advisory Council. Council members like Kevin and Anne Fargusson, who contributed to this article, work to ensure that the insights and voices of people living with FTD help guide AFTD’s policies, programs, and services. “What do you mean I have…
Read MoreNovember 13, 2023 — Penn FTD Center Annual Caregiver Conference
The Penn FTD Center’s Annual Caregiver Conference is for those diagnosed with FTD, and their caregivers, family, and friends to access information and support. With presentations from leading experts in neuropsychology, clinical care, genetics, cognitive neuroscience, and more, attendees will hear the latest on innovative treatments, diagnostics, and practical caregiver strategies. AFTD will be present…
Read MorePenn FTD Center Annual Caregiver Conference
The Penn FTD Center’s Annual Caregiver Conference is for those diagnosed with FTD, and their caregivers, family, and friends to access information and support. With presentations from leading experts in neuropsychology, clinical care, genetics, cognitive neuroscience, and more, attendees will hear the latest on innovative treatments, diagnostics, and practical caregiver strategies. AFTD staff will be…
Read MoreTucson, Ariz. Meet & Greet
AFTD Volunteer Grace McFarland will be hosting a Meet & Greet in the Story Room at the Flowing Wells Library in Tucson, Arizona. Join Grace to meet others with lived experience of FTD, trade insights, and share hope. To RSVP, please contact Grace by email or at (520) 730-7104.
Read MoreAFTD Webinar: Grief, Loss, and Hope — Helping Families Living with FTD
FTD is the most common dementia for people under 60, and often occurs when there are teens or young adults still at home. An FTD diagnosis can bring feelings of immense grief and loss as families’ lives are dramatically altered. This AFTD Healthcare Professional Education webinar offers a greater understanding of FTD’s unique emotional experience.…
Read MoreDoctor Living with FTD Discusses Life Post-Diagnosis in Interview
In an interview recently broadcast by Atlanta News First, former gynecologist Dr. Seth Stern discussed his work to spread awareness of FTD and his desire to live life to the fullest following his FTD diagnosis. In a Wall Street Journal article published earlier this year, Dr. Stern shared that he first began to notice that…
Read MoreVolunteer Update: Giving Purpose to the Pain – Becoming an AFTD Ambassador and FTD Advocate
AFTD Ambassadors know the power of a single story and the healing potential of finding others who understand. Ambassadors are volunteer leaders who represent AFTD in communities across the U.S., raising awareness through their lived experience of FTD while also leveraging their experiences to help others on the FTD journey. For Dawn Kirby, a former…
Read MorePedacito de Carne at the 2023 Montclair Film Festival
Join filmmakers Diana Gonzalez-Morett, Akilah “AK” Walker, and AFTD Ambassador Sandra Gonzalez-Morett at the 2023 Montclair Film Festival this Saturday to share the lived experience of FTD and raise awareness of the disease! Tickets can be purchased by clicking the link below; be sure to use the discount code MFF23-FLM Click Here to Purchase Tickets
Read MoreDear HelpLine: Long-Distance Care Partners
Dear HelpLine, My dad was recently diagnosed with FTD. I’m devastated by the diagnosis, but I live in another state. How can I support him? How can I get support for myself? An FTD diagnosis often has a far-reaching impact not only on the person living with FTD and their primary care partner but on…
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