October 5: Virtual Meet & Greet for Syracuse, New York Area
AFTD Volunteer Molly Secrest is interested in helping to bring FTD awareness and resources to the Syracuse, New York area. More information about an upcoming new virtual support group in Syracuse will be offered at the Meet & Greet, which will take place on Thursday, October 5 beginning at 6:30 p.m. ET. To RSVP and…
Read MoreVirtual Meet & Greet for Syracuse, New York Area
AFTD Volunteer Molly Secrest is interested in helping to bring FTD awareness and resources to the Syracuse, New York area. More information about an upcoming new virtual support group in Syracuse will be offered at the Meet & Greet, which will take place on Thursday, October 5 beginning at 6:30 p.m. ET. To RSVP and…
Read MoreVolunteer Update: Take an Active Role in Advancing FTD Science by Participating in Research
FTD science has come far in the 21 years since AFTD began its mission, with scientists closer than ever to breakthroughs that could bring meaningful change to families facing the disease. But progress is only possible through the participation of those diagnosed with FTD, their care partners, and their family members. Clinical trials, which evaluate…
Read MoreAFTD Healthcare Professional Education Webinar: Grief, Loss, and Hope: –Helping Families Living with FTD
FTD is the most common dementia for people under 60, and often occurs when there are teens or young adults still at home. An FTD diagnosis can bring feelings of immense grief and loss as families’ lives are dramatically altered. This AFTD Healthcare Professional Education webinar will offer a greater understanding of FTD’s unique emotional…
Read MoreAFTD Educational Webinar: Answering Questions and Providing Support — A Q&A with AFTD HelpLine Staff
Understanding and managing FTD can be overwhelming for those living with a diagnosis, their care partners, and healthcare professionals. The AFTD HelpLine is here to provide support. Last year, HelpLine staff connected more than 3,000 people with essential information, resources that aid in managing the disease, and ways to find further assistance. In this AFTD…
Read MoreAFTD Grant Recipient Evaluates Efficacy of Remote Support Program for Dementia Caregivers Newly Adapted for FTD
A pilot study published in the medical journal Aging & Mental Health evaluates the efficacy of a STELLA-FTD, a remote support program tailored to the needs of families affected by FTD. Principal investigator Allison Lindauer, PhD, of Oregon Health & Science University (OHSU), received an AFTD Pilot Grant for the study in 2020. The stress…
Read MoreResearch Paper Highlights Gaps in FTD Research, Calls for Greater Diversity in Studies
A comprehensive research paper published in the journal Alzheimer’s & Dementia highlights critical gaps in FTD research and calls on the international scientific community to incorporate greater diversity in future research and clinical studies. Members of AFTD’s staff and Medical Advisory Council (MAC) were among the many professionals who helped co-author the paper, including AFTD’s…
Read MoreHelp & Support: Sleep Issues in FTD
Changes to sleep routines are a common challenge for the person living with FTD and their care partners. Sleep changes can come in many forms including: Waking frequently during the night Sleeping during the day, while being awake at night Not sleeping for long stretches or even days at a time Sleeping for extended periods…
Read MoreNIH Identifies Genetic Risk Factors for FTD, Offers Data to Researchers Online
Scientists at the National Institutes of Health (NIH) leveraged cutting-edge technology to identify genetic risk factors for FTD and Lewy body dementia in a study published earlier this year in Cell Genomics. NIH’s study focused on “structural variants” – segments of DNA above a specific size that have been copied, deleted, moved, or otherwise altered.…
Read MoreAustralian Journalist Running Sydney Marathon to Honor Late Mother
Journalist Daisy Dumas will be running the Sydney Marathon on September 17 to raise awareness of FTD, the disease her mother lived with until her death in 2020. On a website she launched to document her training, A Marathon a Week, Dumas writes that her mother began showing signs of FTD when she was in…
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