Sacramento, Calif. Meet & Greet
Join and learn from others who understand the FTD journey at this AFTD Meet & Greet event, taking place in Roseville, California, outside of Sacramento, on Sunday, March 10, starting at 3:30 p.m. PT. AFTD Ambassador Terry Walter and AFTD volunteer Ed Fargusson will be hosting this event, which will be held at the Seventh…
Read MoreMemphis, Tenn. Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in and around Memphis, Tennessee on Saturday, March 2, starting at 10:30 a.m. CT. Email event host Whitney Henry at whitgillespie@yahoo.com to RSVP and to obtain the Zoom link. If you have any questions or…
Read MoreTucson, Ariz. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Tucson, Arizona on Tuesday, February 20, starting at 1:00 p.m. MT. The event will be held in the Storytime Room of the Flowing Wells Library, located at 1730 West Wetmore Road. RSVP by contacting event host…
Read MoreNews Report on Tallahassee Couple’s FTD Journey Highlights Challenges of Misdiagnosis
A report aired by Tallahassee news station WTXL27 shares how FTD has affected the lives of a local couple. Larry Davis told reporter Maya Sargent that his FTD diagnosis and the associated behavioral symptoms upended the plans he and his wife, Betty, had made for retirement. “I thought we could go out and travel a…
Read MoreVolunteer Update: AFTD Ambassadors Welcome New Cohort
The AFTD Ambassador program was launched in 2019 as a new opportunity for AFTD’s volunteer leadership. Since then, the initial cohort of Ambassadors has grown into an enthusiastic, highly motivated group that works year-round towards the goal of a future free of FTD. Ambassadors are volunteer leaders who represent AFTD in communities nationwide, identifying opportunities…
Read MorePublic Benefits When Notable Names Share Neurological Challenges, UCLA Professor Writes
In an opinion piece published last month in the Los Angeles Times, Keith Vossel, MD, of the University of California, Los Angeles, writes that celebrities and politicians who share their struggles with neurological challenges like FTD can create opportunities to advance public understanding of dementias and other brain disorders. In the past, politicians and celebrities…
Read MoreFTD Clinical Research Learning Institute
Hosted by the Penn Frontotemporal Degeneration Center in partnership with AFTD, the FTD Clinical Research Learning Institute is a one-day virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research by educating them on the clinical research process. Topics will include FTD…
Read MoreJanuary 18 — Starting Fresh 2024: Empowering Caregivers Conference
AFTD is co-sponsoring Starting Fresh 2024: Empowering Caregivers, a caregivers conference held by the Alzheimer’s Association Capital of Texas Chapter at the Georgetown Public Library on January 18 from 9:00 a.m. to 1:00 p.m. CT. AFTD Ambassador Susan Eissler will have an information table at the event. Click here to register. For more information, call…
Read MoreStarting Fresh 2024: Empowering Caregivers Conference
AFTD is co-sponsoring Starting Fresh 2024: Empowering Caregivers, a caregivers conference held by the Alzheimer’s Association Capital of Texas Chapter. AFTD Ambassador Susan Eissler will have an information table at the event. Click here to register. For more information, call 800-272-3900.
Read MoreAdvancing Hope: AFTD Holds 2023 Holloway Summit Meeting on Biomarkers for FTD
The second annual AFTD Holloway Summit, focused on biomarkers for FTD, was held from November 30 to December 1 in Miami Beach, FL. More than 50 attendees from academia, industry, nonprofit partners, and people with lived experience of FTD contributed to vibrant discussions on the current state of FTD biomarkers and various approaches for facilitating…
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