Emma Heming Willis Shares Her FTD Experience and Advocacy Work in “Town & Country” Magazine
Emma Heming Willis spoke with journalist Katie Couric about her journey as an FTD care partner, as well as her advocacy for FTD legislation and research following the diagnosis of her husband, Bruce Willis, in an interview published in the November 2024 issue of “Town & Country.” For her ongoing advocacy work, Mrs. Willis will be…
Read More2024 Driving Hope for FTD Rare Bourbon and Scotch Holiday Auction
AFTD Board of Directors Alumni, Michael Stowell, is hosting the 2024 Driving Hope for FTD Rare Bourbon and Scotch Holiday Auction with proceeds to benefit AFTD’s mission. There’s two ways to get involved in this event, for locals and not! Online Auction: from now until November 30th, you can bid on rare Buffalo Trace and…
Read MoreIn-Person Meet & Greet in Portland, Oregon
Meet actress and filmmaker Katie Prentiss to hear about her new full-length movie project, “Wake Up Maggie.” Hosts Allison Lindauer and David Spencer will provide drinks and appetizers at this open house, held on November 2, 2024, 4-6 PM. Donations for “Wake up Maggie” will be gladly received.
Read MoreProtected: Empower a Future Free of FTD with a Year-End Gift
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Read MoreAdvancing Hope: AFTD Attends Tau Consortium Investigators Meeting
Members of the AFTD staff, along with several funding partner organizations, gathered with the world’s top scientists studying tauopathies for the 2024 Tau Consortium Investigators Meeting (TCIM) this September in Denver. The Tau Consortium™ is a collaborative research program that is managed and funded by the Rainwater Charitable Foundation (RCF) that fosters collaboration and knowledge-sharing,…
Read MoreTips and Advice: Understanding Ambiguous Loss and Anticipatory Grief
Andy Atwood, a retired psychotherapist and clergyman, knows about grief. In addition to working as a grief counselor, he experienced grief firsthand after the 2021 death of his beloved younger brother, who had FTD. Last year, after the family of Bruce Willis announced the actor had been diagnosed with FTD, he found that “yet another…
Read More14th Annual Quest for the Cure Golf Tournament
The 14th annual Quest for the Cure Golf Tournament hosted by the Robert M. Hatfield Foundation is taking place on December 13, 2024, at the Bardmoor Golf & Tennis Club in Seminole, FL. Registration begins at 11:00 am with a shotgun start (scramble format) at 12:30 pm. Dinner, cocktails and awards will begin at 6:00…
Read MoreYoung Woman Tells Her Family’s FTD Story on Philadelphia News Segment
FTD care partner Hannah Clarke was interviewed on October 15 for a segment on Good Day Philadelphia about her experiences caring for her mother, Claudine, who is living with an FTD diagnosis. Hannah was attending college in Cleveland when she and her brother noticed that Claudine was developing a condition that needed to be addressed.…
Read MoreStudy Finds Suicidal Thoughts Likelier in People with Dementia, Calls for Better Supports
A study conducted by researchers at University College London (UCL) published in the journal Ageing Research Reviews finds that people diagnosed with dementia have a higher chance of experiencing suicidal thoughts but are not more likely to die by suicide than the general population. The authors highlight a growing need for better support for people…
Read MoreAFTD Ambassador Shares Her Family’s FTD Story with Massachusetts Newspaper
Dawn O’Gara, an ATD Ambassador, spoke about her beloved father’s FTD diagnosis and how it spurred her activism in an article published in the Worcester Telegram & Gazette on October 7. Normally a “take charge” type of person, O’Gara’s father James Tobin began acting out of character in the early 2010s. His generous and devoted…
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