In-Person Meet & Greet in Reno, NV
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by AFTD Ambassador Scott Oxarart. Please RSVP to Scott at soxarart@theaftd.org. To learn more, download this flyer.
Read MoreAstellas and AviadoBio Announce Exclusive License Agreement for FTD-GRN Gene Therapy
Astellas Pharma and AviadoBio have announced an exclusive license agreement for AVB-101, an experimental gene therapy for FTD-GRN currently undergoing a phase 1/2 clinical trial in the United States and Europe. FTD caused by an inherited GRN genetic mutation inhibits the production of the essential protein progranulin, which leads to the accumulation of proteins such…
Read MoreNovember 9, 2024: FTD and Young Onset Meet & Greet in San Diego, CA
Join Alzheimer’s San Diego, For Their Thoughts Foundation, and AFTD for an informal Meet & Greet, have your questions answered, and learn more about the services and support the three organizations provide. The event will be held from 10:00 – 11:00 a.m. PT in at Alzheimer’s San Diego Community Room, Suite 300 (3635 Ruffin Road).…
Read MoreFTD and Young Onset Meet & Greet in San Diego, CA
Join Alzheimer’s San Diego, For Their Thoughts Foundation, and AFTD for an informal Meet & Greet, have your questions answered, and learn more about the services and support the three organizations provide. RSVP for this event by emailing caretrain@gmail.com. To learn more, download this flyer.
Read MoreAlzheimer’s Association North Idaho Caregiver Conference
AFTD Ambassador Joanne Linerud will be hosting an information table at the Alzheimer’s Association North Idaho Caregiver Conference on November 8, 2024, from 9 AM – 2 PM PDT at the Student Union Building of North Idaho College. This free event for care partners will feature guidance from dementia experts, a Q&A panel, as well as…
Read MoreVolunteer Update: Celebrating the Growth of FTD Awareness
It is not often that the community comes together in person, so it was extra special when AFTD Ambassadors Melissa Fisher and Scott Rose organized a gathering in Portland to celebrate the new Oregon state awareness proclamation. The proclamation establishing September 22-29, 2024, as FTD Awareness Week was signed by Governor Tina Kotek on August…
Read MoreAdvancing Hope – AFTD Attends 2024 International Society for FTD Conference
The AFTD was proud to have ten staff members, and four Board members attend the International Society for FTD Conference (ISFTD) in Amsterdam in late September. This is a premier bi-annual conference convening approximately 800 leading experts in FTD – including researchers, clinicians, drug developers, advocates, and people with lived experience. The AFTD Programs team…
Read More2024 Penn FTD Center Annual Caregiver Conference: Nurturing our Caregivers
AFTD staff will be hosting an informational table at the Penn FTD Center’s 2024 Caregiver Conference, titled Nurturing Our Caregivers, being held Monday, November 18, 2024 from 8:30 AM – 3:30 PM. The conference is an opportunity for people diagnosed with FTD, their care partners, family, and friends to learn more about FTD and the resources…
Read MoreStudy Finds That FTD and ALS Have Similar Cellular and Molecular Characteristics
A study by MIT and Mayo Clinic researchers published in the Cell journal finds that FTD and ALS have strikingly similar cellular and molecular characteristics despite their clinical differences. The 2011 discovery that the C9orf72 gene mutation can cause FTD and/or ALS transformed the long-held belief that the two disorders were unrelated. It is now…
Read MoreThe Power of Advocacy
AFTD would like to highlight the power of advocacy in contributing to the greater awareness of FTD. This year’s World FTD Awareness Week was filled with contributions large and small by advocates who took their time to create awareness and fundraising events, who posted about FTD and AFTD on social media, and who worked with their legislators…
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