Guest Feature: Somebody’s Sister
FTD is an aggressive disease that disrupts people’s lives and relationships, with families often unsure what they are up against at first because it isn’t widely known. As Deborah Dowdell Perry shares in the following essay, finding a community of support can make a world of difference on the grief and pain filled FTD journey. There were…
Read MoreBroadcaster Wendy Williams Diagnosed with FTD
The former talk show host Wendy Williams was diagnosed with FTD last year, her care team announced in a Feb. 22 statement. “In 2023, after undergoing a battery of medical tests, Wendy was officially diagnosed with primary progressive aphasia and frontotemporal dementia (FTD),” her care team said in the statement. Williams, who is 59, began…
Read MoreAFTD Volunteer Shares Father’s FTD Journey to Promote Awareness in News Interviews
AFTD volunteer Scott Oxarart raised awareness of FTD throughout Nevada in interviews aired by 2 News Nevada and KOLO News Now on February 13 and 14. A former care partner for his late father, Steve, Oxarart shared experiences from his family’s FTD journey. Oxarart told 2 News reporter Jaden Urban that he and his father…
Read More2024 Dallas Marathon: December 14-15
Please support our team as we take on the 2024 Dallas Marathon on December 14-15 and raise money for AFTD!
Read More2024 Dallas Marathon
Please support our team as we take on the 2024 Dallas Marathon on December 14-15 and raise money for AFTD!
Read More2024 New York City Marathon: November 3
Please support our team as we take on the 2024 TCS New York City Marathon on November 3 and raise money for AFTD!
Read More2024 New York City Marathon
Please support our team as we take on the 2024 TCS New York City Marathon on November 3 and raise money for AFTD!
Read MoreTransposon Announces Results from Phase 2 PSP Trial, Interim Results for Phase 2 FTD/ALS Trial
The biotechnology company Transposon Therapeutics on February 12 released final results for its phase 2 clinical trial focusing on progressive supranuclear palsy (PSP) and interim results for its phase 2 trial focusing on FTD and ALS caused by inherited variants of the C9orf72 gene. The trials are evaluating the drug TPN-101 as a treatment for…
Read More2024 Philadelphia Marathon: November 23-24
Join the AFTD-Team at the 2024 Philadelphia Marathon, as we bring greater FTD awareness to the surrounding Philadelphia area and raise funds to help people affected by FTD. The AFTD-Team will participate in the Philadelphia Marathon on November 23-24 as an Official Charity Partner. We hope you’ll join us for a weekend of connection and…
Read More2024 Philadelphia Marathon
Join the AFTD-Team at the 2024 Philadelphia Marathon, as we bring greater FTD awareness to the surrounding Philadelphia area and raise funds to help people affected by FTD. The AFTD-Team will participate in the Philadelphia Marathon on November 23-24 as an Official Charity Partner. We hope you’ll join us for a weekend of connection and…
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