Guest Feature: Capturing Voices – Considerations When Writing YOUR Book
The grief caused by FTD is persistent, lasting well beyond the end of the FTD journey for family and friends. However, as author and support group volunteer Scott Rose shares in the following essay, writing can be a powerful tool for healing regardless of whether you want to get published or not. No other accomplishment means more…
Read MoreResearcher Discusses Integrating Genetic Testing Into Routine FTD/ALS Care in Podcast Interview
Offering genetic testing to persons diagnosed with FTD/ALS disorders should be a routine part of clinical care, Laynie Dratch, ScM, CGC, of Penn Medicine, said in a December 2023 interview with Neurology Podcast. In the episode, Dratch and host Gordon Smith, MD, of Virginia Commonwealth University, discuss a review article co-authored by Dratch and recently…
Read MoreFamilial Conference: Uncovering the Genetics of FTD/ALS
The Penn FTD Center has opened registration for the fourth annual familial conference , Uncovering the Genetics of FTD/ALS, on February 21, 2024, from 3:00-6:00 PM. This virtual event has been designed to address the unique challenges that can arise from familial diseases like FTD and ALS. During the conference, you will have the opportunity to hear from…
Read MorePerspectives in FTD Research Webinar: Gene Therapy for FTD — What Do I Need to Know?
In the last several years, new clinical trials have begun for drugs that can potentially slow or stop the progression of FTD caused by specific genes. Gene therapy and gene editing technologies that have been available for other diseases and conditions hold promise for a treatment for FTD, but, as with all new medical interventions,…
Read MoreFebruary 24, 2024: Virtual Meet & Greet for Delray Beach, Fla. Area
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in and around Delray Beach, Florida on Saturday, February 24, starting at 10:00 a.m. ET. Contact event hosts Susan and Krista Pickett to RSVP and receive the link. Either send an email to susansjk72@aol.com or…
Read MoreDelray Beach, Fla. Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in and around Delray Beach, Florida on Saturday, February 24, starting at 10:00 a.m. ET. Contact event hosts Susan and Krista Pickett to RSVP and receive the link. Either send an email to susansjk72@aol.com or…
Read MoreMarch 2, 2024: Virtual Meet & Greet for Memphis, Tenn. Area
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in and around Memphis, Tennessee on Saturday, March 2, starting at 10:30 a.m. CT. Email event host Whitney Henry at whitgillespie@yahoo.com to RSVP and to obtain the Zoom link. If you have any questions or…
Read MoreMarch 2, 2024: In-Person Meet & Greet in New Orleans, La.
Join and learn from others who understand the FTD journey at this virtual Meet & Greet event in New Orleans on Saturday, March 2, starting at 10:00 a.m. CT. The event will be held at the Chalstrom House, located at 1111 S. Carrollton Ave. To RSVP, contact event host Rachael MacIssac Parker by email (rachael.m.parker@gmail.com)…
Read MoreMarch 10, 2024: In-Person Meet & Greet in Sacramento, Calif.
Join and learn from others who understand the FTD journey at this AFTD Meet & Greet event, taking place in Roseville, California, outside Sacramento, on Sunday, March 10, starting at 3:30 p.m. PT. AFTD Ambassador Terry Walter and AFTD volunteer Ed Fargusson will be hosting this event, which will be held at the Seventh Day…
Read MoreFebruary 20, 2024: In-Person Meet & Greet in Tucson, Ariz.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Tucson, Arizona on Tuesday, February 20, starting at 1:00 p.m. MT. The event will be held in the Storytime Room of the Flowing Wells Library, located at 1730 West Wetmore Road. RSVP by contacting event host…
Read More
English 
Spanish (Mexico) 
French 
German 
Swedish 
Portuguese 
Italian 
Dutch 
Danish 
Polish 
Spanish (Spain)