High-Profile FTD Diagnoses Boost Public Awareness, AFTD Ambassador Says
In a March 1 interview with the Rochester, Minn.-based station KAAL-TV, AFTD Ambassador Deb Scharper noted that the public announcements of the FTD diagnoses of Wendy Williams and Bruce Willis have helped bring more attention to the disease. The diagnoses of Williams and Willis conveyed to the public that FTD can strike while people are…
Read MoreAFTD Webinar — Making a Difference: Becoming an FTD Advocate
Many members of the AFTD community have found meaning and purpose by becoming an FTD advocate, working to make the journey easier for the next family. But how does one become an advocate? What are some best practices when it comes to delivering advocacy messages? And what types of legislation should we be supporting to…
Read MoreMarch 23, 2024: In-Person Meet & Greet in Spring Valley, Minn.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD Ambassador Deb Scharper, in Spring Valley, Minn., on Saturday, March 23, at 1:00 p.m. CT. The event will take place at the Four Daughters Vineyard & Winery on 78757 State Highway 16. To RSVP,…
Read MoreA Note to the AFTD Community about Wendy Williams’s FTD Diagnosis
Since last week’s announcement that the former talk show host Wendy Williams has been diagnosed with FTD, combined with the premiere of the docuseries Where Is Wendy Williams? over the weekend, many members of AFTD’s community have reached out to express the raw emotions that have been reawakened within them, along with empathy and concern…
Read MoreSpring Valley, Minn. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD Ambassador Deb Scharper, in Spring Valley, Minn., on Saturday, March 23, at 1:00 p.m. CT. To RSVP, contact Deb by emailing dscharper@theaftd.org or by calling 641-220-5701. We encourage you to download this flyer and…
Read MoreAFTD Webinar: The Current State of FTD
Today, more people than ever know what FTD is and how it differs from other dementias, while clinical trials are actively testing therapies that could slow or halt disease progression. This AFTD Educational Webinar provides a more detailed picture of the current state of FTD, and show you where it could be heading. AFTD staff…
Read MoreAdvocacy Update: Rare Disease Day and FTD
Rare Disease Day, which occurs annually on the last day of February, was established by the European Organization for Rare Diseases and first observed on February 29, 2008. Rare Disease Day was first observed in the United States in 2009; today, over 100 countries and regions around the world observe it. The goal of Rare…
Read MoreMarch 13, 2024 — There’s More Than Alzheimer’s: Sharing the Spotlight with Lewy Body Dementia and Frontotemporal Degeneration
AFTD Ambassador Jackie Shapiro will talk about FTD at this workshop presented by the Alzheimer’s Foundation of America (AFA) and taking place at the Apsley, an assisted living facility located on Manhattan’s Upper West Side (2330 Broadway). Attendees will learn about the causes, risk factors, and symptoms of both FTD and Lewy body dementia. Norma…
Read MoreThere’s More Than Alzheimer’s: Sharing the Spotlight with Lewy Body Dementia and Frontotemporal Degeneration
AFTD Ambassador Jackie Shapiro will talk about FTD at this workshop presented by the Alzheimer’s Foundation of America (AFA). Attendees will learn about the causes, risk factors, and symptoms of both FTD and Lewy body dementia. Norma Loeb, founder and Executive Director of the Lewy Body Resource Center, will present on the latter dementia. Licensed…
Read MoreMagazine Editor Shares Legacy of Beloved Seattle Music Promoter Diagnosed with FTD
In an interview with NPR, Charles R. Cross, former editor of the music magazine The Rocket, shared the legacy of Seattle music promoter Susie Tennant, who died in January after living with FTD for several years. In addition to bringing several Seattle bands, including Nirvana, into the limelight, Tennant brought sincere positivity to the city’s…
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