FTD Care Partner Shares Memories of Her Mother on TikTok
In an interview with Newsweek, FTD care partner Channing Clifford shares her favorite memories with her mother, Valerie, who was diagnosed with FTD last year. Roughly 10 years ago, Valerie was struck by a car while riding her bike and suffered a traumatic brain injury. In the years since, Clifford noted that Valerie was acting…
Read MoreThe Lived Experience of FTD: Driving and FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council work to share the insights of persons diagnosed to help guide AFTD on its mission for an FTD-free future. We remember that exciting day when we got our driver’s license. Driving a car by ourselves, we discovered our…
Read MoreLink Between TAF15 Protein and FTD Discovered in UK Study
In a study published in the scientific journal Nature, researchers in the United Kingdom discovered that a previously known protein may play a role in the development of an FTD subtype once thought to be associated with the FUS protein. The abnormal accumulation of the proteins TDP-43 and tau have been previously identified as playing…
Read MoreAFTD Launches Social Media Campaign to #EndDementiaStigma
AFTD has launched #EndDementiaStigma, a social media campaign to mark Brain Awareness Week. The campaign empowers people with FTD, along with their care partners, family members, and friends, to share stories of how they continue to find meaning and connection, and to educate those around them to end dementia stigma. The campaign is initially launching…
Read More“Smple Mnds” Fundraiser
HL McIntyre from the UK is holding a fundraiser for her book, “Smple Mnds” where 20% of proceeds from the book sales will be donated to AFTD’s mission for the next six months in memory of her husband, who died in 2018, shortly after his FTD diagnosis. In this book, she shares her family’s FTD…
Read MoreSecond Annual Kim Rose Cure for Dementia Wings & Rings Golf Outing
Christin Rose and her family are hosting the 2nd Annual Kim Rose Cure for Dementia Wings & Rings Golf Outing on June 28, 2024, at Glenview Golf Course in Cincinnati, OH. The event is in honor of Christin’s mother-in-law, Kim, who is living with FTD, and to celebrate her 63rd birthday. The fun starts at…
Read MoreDear HelpLine: Looking for Support Options
Dear HelpLine, Our family is looking for ways to connect with other FTD care partners for support. What options are available? A core part of AFTD’s mission is to help FTD care partners access the support they need. One way to get support is by connecting with other care partners. These connections can be a…
Read MoreLos Angeles, Calif. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Alma Valencia at Be Nice Have Fun, a community space and gift shop in Los Angeles, on Saturday, March 30, at 9:30 a.m. PT. Please RSVP to Alma at almav21@gmail.com or by calling…
Read MoreMarch 30, 2024: In-Person Meet & Greet in Los Angeles, Calif.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Los Angeles, hosted by AFTD volunteer Alma Valencia at Be Nice Have Fun (5011 York Boulevard), a community space and gift shop, on Saturday, March 30, from 9:30 to 10:30 a.m. PT. Please RSVP to Alma…
Read MoreUnderstanding Dementia with a Focus on Alzheimer’s & FTD
Join AFTD Ambassador Dawn O’Gara and Julie McMurray, MA, LMHC, CDP, of the Alzheimer’s Association for this virtual presentation on FTD and Alzheimer’s disease. Attendees will learn about the signs and symptoms of FTD and Alzheimer’s and the resources available through AFTD and the Alzheimer’s association. View this downloadable pdf for more information.
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