Biomarkers Consortium Letter of Intent to Qualify FTD Biomarker accepted by FDA
The Foundation for the National Institutes of Health (FNIH) Biomarkers Consortium announced in May that the US Food and Drug Administration (FDA) has accepted its letter of intent to apply for the qualification of the protein neurofilament light (NfL) in blood as a biomarker for the early detection of approaching symptom onset in genetic FTD.…
Read MoreJune 24, 2024: VA Caregiver Support Annual Summit
AFTD staff will have an information table during the annual summit of the VA New Jersey Health Care System in East Orange. The event, which this year is titled “Beyond the Caregiving Role: Seeing the ‘Whole’ Caregiver,” will be held in the third floor auditorium in the East Orange VA Medical Center on June 24,…
Read MoreVA Caregiver Support Annual Summit
AFTD staff will have an information table during the annual summit of the VA New Jersey Health Care System in East Orange. The event, which this year is titled “Beyond the Caregiving Role: Seeing the ‘Whole’ Caregiver,” is held in the third floor auditorium in the East Orange VA Medical Center.
Read MoreAprinoia Therapeutics Receives Fast Track Designation for PET Tracer for PSP Diagnosis
Biopharmaceutical company Aprionoia Therapeutics announced that it has received an FDA Fast Track Designation for an imaging tracer used to diagnose progressive supranuclear palsy (PSP), an FTD disorder that primarily affects movement. Aprinoia is evaluating the safety and efficacy of APN-1607, a PET tracer that can visualize two types of tau protein that contribute to…
Read MoreDear HelpLine – Support for Young Adults
Dear HelpLine, My mom was diagnosed with FTD and I’m looking to connect with other young adults caring for a parent with FTD. Without support, I am overwhelmed and feel alone. Do you have any suggestions? Because FTD often occurs at a younger age, young adults in the family regularly find themselves becoming a primary…
Read MoreAdvancing Hope: AFTD Joins National Institutes of Health AMP ALS Initiative as Partner
AFTD is joining fellow nonprofits, biopharmaceutical companies, and the U.S. Food and Drug Administration (FDA) as partners in the Accelerating Medicines Partnership for ALS (AMP ALS) initiative. AFTD’s participation in the initiative was made possible thanks to the support of David and Weezie Reese. The 2011 discovery that mutations of the gene c9orf72 can cause…
Read MoreNew York FTD Registry Bill Passes State Senate
A bill establishing a registry of FTD diagnoses in New York State unanimously passed the state Senate on June 5. Sponsored by Sen. Michelle Hinchey, Senate Bill 7874 requires healthcare providers in New York to report diagnoses of FTD to a registry run by the state Department of Health (DOH). The bill also establishes an…
Read MoreAFTD Board Member Kristin Holloway Tells Her FTD Story to Self Magazine
AFTD Board member Kristin Holloway shared her experiences as a care partner for her husband, Lee, in an article published by Self magazine on May 17. Holloway began noticing alarming changes to Lee’s behavior in May 2016, when he was in his mid-30s. He regularly arrived late, or not at all, to his job at…
Read MoreJuly 15, 2024: Virtual Meet & Greet for Pittsburgh, Pa. Area
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in the Pittsburgh, Pa. area on Monday, July 15, beginning at 6:30 p.m. RSVP by emailing event host Janet Freburger at janet.freburger@gmail.com. You can also download this flyer to learn more.
Read MorePittsburgh, Pa. Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in the Pittsburgh, Pa. area on Monday, July 15. RSVP by emailing event host Janet Freburger at janet.freburger@gmail.com. You can also download this flyer to learn more.
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