Terre Haute, Ind. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Terre Haute, Indiana on Saturday, April 27, starting at 2:00 p.m. ET. To RSVP, send an email to AFTD Ambassador Dawn Kirby at dkirby@theaftd.org. The event will take place at Gingersnaps Coffeehouse & Cafe, located in…
Read MoreApril 27, 2024: In-Person Meet & Greet in Terre Haute, Ind.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Terre Haute, Indiana on Saturday, April 27, starting at 2:00 p.m. ET. To RSVP, send an email to AFTD Ambassador Dawn Kirby at dkirby@theaftd.org. The event will take place at Gingersnaps Coffeehouse & Cafe (located in…
Read MoreAFTD Partners with ALS Association to Support Advancing Digital Tools
Although FTD and amyotrophic lateral sclerosis (ALS) have long been considered distinct disorders, experts now recognize that the two disorders have much in common. Both can be caused by a defect in the c9orf72 gene and trigger similar pathological changes to the brain. In addition, symptoms of both disorders can occur in the same person,…
Read MorePerspectives in Research Webinar: Navigating Social and Legal Challenges in Familial FTD
Join us for a conversation with Prof. Jalayne Arias, a researcher focused on policy, ethics, and law, and genetic counselor Laynie Dratch as they discuss important considerations for families impacted by familial FTD. They will highlight some of the sociolegal challenges these families can face, and will explain the protections provided by federal laws like the…
Read MoreGuest Feature: Finding Support and Understanding on the Go with the Hidden Disabilities Sunflower
For persons diagnosed with FTD, simply existing in public can be challenging. FTD’s symptoms can cause difficulties while shopping, ordering food, or participating in social activities. Traveling – with its lines, security checks, crowds, and tight quarters – adds further complexity. Because FTD isn’t widely known, the public generally won’t be aware of the challenges…
Read MoreDementia Advocate with FTD Shares Her Perspective on Losing Her Driver’s License
In a blog article published by the Older Persons Advocacy Network of Australia, dementia advocate Gwenda Darling shares her perspective on losing her driver’s license due to her FTD diagnosis. Driving is a cognitively demanding task that is directly impacted by the symptoms of FTD. While it is possible for some persons diagnosed to drive…
Read More8th Annual Crusade for a Cure Golf Tournament
AFTD Ambassador Deb Scharper will host the 8th Annual Crusade for a Cure Golf Tournament on August 31, 2024, with proceeds benefiting AFTD’s Research Initiatives. The tournament will be held at Sunny Brae Golf Course (Osage, IA) and will feature a two-person best shot format on 18 holes, four hole-in-one opportunities, plus mulligan and fairway…
Read MoreMay 11, 2024: In-Person Meet & Greet in Leicester, Mass.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Leicester, Mass. on Saturday, May 11, starting at 10:30 a.m. ET. Email Dawn O’Gara at dogara@theaftd.org to RSVP. The event will take place from 10:30 – 11:30 a.m. at the Community Meeting Room in the Leicester…
Read MoreLeicester, Mass. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Leicester, Mass. on Saturday, May 11, starting at 10:30 a.m. ET. Email dogara@theaftd.org to RSVP. Download this flyer to learn more — and be sure to share it with others who could benefit from this opportunity.
Read MoreAFTD Webinar: Making a Difference — Become an FTD Advocate
Many members of the AFTD community have found meaning and purpose by becoming an FTD advocate, working to make the journey easier for the next family. But how does one become an advocate? What are some best practices when it comes to delivering advocacy messages? And what types of legislation should we be supporting to…
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