Hope Rising Benefit Honors Dr. Bruce Miller, Raises $1.9 Million for AFTD’s Mission
The eighth annual AFTD Hope Rising Benefit, held April 4 at New York City’s Ziegfeld Ballroom, raised more than $1.9 million to support AFTD’s mission of helping those affected by FTD and driving research toward a cure. Bruce Miller, MD, the director of the Memory and Aging Center at the University of California, San Francisco,…
Read MoreNew York State Senator Michelle Hinchey Introduces First-in-the-Nation Legislation to Create FTD Research Registry
ALBANY, N.Y. — Today, New York State Senator Michelle Hinchey unveiled legislation (S7874/A9938) to establish the country’s first statewide Frontotemporal Degeneration (FTD) Research Registry. The registry would help educate doctors on FTD — among the most common and yet little-understood forms of dementia — provide insight into the number of FTD diagnoses across New York,…
Read MoreNational Meet & Greet for LGBTQIA+ Adults Confronting FTD
LGBTQIA+ people living with or caring for a loved one with FTD face compounding stressors unique to their population. AFTD is committed to providing a safe, affirming environment to access resources and psychosocial support for care partners while navigating the FTD journey, with people who understand their lived experiences. AFTD will host a national, virtual…
Read MoreNational Meet & Greet for College-Aged Adults Confronting FTD
AFTD will host a national, virtual Meet & Greet on June 15 for those aged 17-26 who live with and help care for a person living with FTD. We will discuss some of the particular struggles for those of us in this age group and also introduce a new National Support Group for Young Adult…
Read MoreVolunteer Update: How Can a Meet & Greet Help?
Navigating FTD can be a frustrating, exhausting, and isolating ordeal for persons diagnosed, care partners, and family members. Information about the disease and how to manage its symptoms guidance can be hard to find even after a diagnosis. An AFTD Meet & Greet can help fill those gaps. Meet & Greets are volunteer-hosted events gather…
Read MoreAFTD announces 2023 Pathways for Hope Pilot Grant recipients
AFTD’s Pilot Grant program – our longest running funding opportunity – provides seed funding for innovative FTD research, laying the groundwork for additional follow-on support from a larger funder. Pathways for Hope Pilot Grants target early-career researchers carrying out basic (discovery) research and translational research that is the first step in advancing promising science from…
Read MoreTips & Advice: Dealing With the Loss of Empathy
One of the most distressing symptoms of FTD is a loss of empathy, which can cause persons diagnosed to become uncharacteristically indifferent towards other people, including loved ones. This loss is often accompanied by a lack of emotional expression, commonly displayed as a flat affect or blank stares. Family and friends must remember that these…
Read MoreMay 15, 2024: TEDx Miami’s “Stories of Resilience,” featuring Dr. Leila Allen
Dr. Leila Allen, a neuroscientist and the founding director of the behavioral neuroscience undergraduate program at Florida International University, will be speaking at a TEDx Miami event called “Stories of Resilience.” Dr. Allen’s talk will focus on brain resiliency and will address both FTD and Alzheimer’s. The event will take place on May 15 from…
Read MoreTEDx Miami’s “Stories of Resilience,” featuring Dr. Leila Allen
Dr. Leila Allen, a neuroscientist and the founding director of the behavioral neuroscience undergraduate program at Florida International University, will be speaking at a May 15 TEDx Miami event called “Stories of Resilience.” Dr. Allen’s talk will focus on brain resiliency and will address both FTD and Alzheimer’s. Visit the TEDx Miami website to learn…
Read MoreU.K. Researchers to Conduct Nationwide Trial Evaluating Blood Test for Dementia
Researchers in the United Kingdom are preparing to conduct a nationwide trial evaluating blood tests for biomarkers of dementias like FTD and Alzheimer’s disease, according to a recent article by Neuroscience News. The goal of the trial is to generate the evidence needed for the tests to be utilized used by the U.K.’s National Health…
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