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AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting a AFTD Volunteer Coordinator at volunteer@theaftd.org.
Sign Up To Receive AFTD Alerts
News & Events Near You
Dear HelpLine: Looking for Support Options
Dear HelpLine, My brother was diagnosed with FTD. I see that AFTD offers support groups, but I’m…
Study Examines Nature of Criminal Risk Behaviors in Dementia
An Australian Study uses an experimental screening tool to examine the propensity and nature of criminal risk…
Guest Feature: The Story Behind the Story – Our Journey Through FTD and Why I Wrote “Welcome to the Honey B & B”
Novelist Melody Carlson drew from her family’s FTD story to write her latest book, Welcome to the…
Passage Bio Announces Interim Data for UpliFT-D Trial for FTD-GRN
Biotechnology company Passage Bio released interim data for its upliFT-D clinical trial for its gene replacement therapy…
Advocacy Update: Protect FTD Research Today!
Calling all AFTD advocates – federal funding for FTD research is at risk, and we need your…
FTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research
An article published in the journal Alzheimer’s & Dementia identifies gaps in current FTD research caused by…
The Lived Experience of FTD: FTD and Intimacy
In the following article, Anne Fargusson, RN, a member of the Persons with FTD Advisory Council, writes…
Vesper Bio Clinical Trial for FTD-GRN Enters Phase Ib/IIa
Danish biotechnology company Vesper Bio announced in January that its clinical trial for a potentially disease-modifying drug…
Dear HelpLine: Home and Community Care Options
Dear HelpLine, My spouse has FTD. I have been caring for them in our home, and I’ve…
The Lived Experience of FTD: Managing the Emotional Impact of Job Loss in FTD
When someone is diagnosed with FTD, it is almost guaranteed that they will eventually have to leave…
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