What's New

Advancing Hope: AFTD Hosts Industry Advisory Panel

On August 8 and 9, AFTD hosted an industry advisory panel in which a group of people whose lives have been touched by FTD shared their experiences and perspectives with…

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Guest Feature: One Woman’s Journey – from Getting Diagnosed to Attempting Suicide to Embracing Life

September is Suicide Prevention Month. Below, Deb Jobe, a member of AFTD’s Persons with FTD Advisory Council, courageously shares the story of her suicide attempt following an FTD diagnosis, and…

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October 4, 2024: In-Person Meet & Greet in Midlothian, VA

Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Midlothian, Virginia, near Richmond, hosted by AFTD volunteer Carrie Edwards. The…

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Medical Technology CEO Discusses Using EEG to Differentiate FTD and Alzheimer’s

In an interview with Neurology Live, Advanced Brain Monitoring CEO Chris Berka shares insights from a pilot study that found how electroencephalography (EEG) can be used to differentiate between FTD,…

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A Conversation with Juan Chavez, MD, of Passage Bio

AFTD recently spoke with Passage Bio Vice President of Clinical Development Juan Chavez, MD, about the company’s work to develop a therapy addressing FTD. Here, Dr. Chavez shares where he…

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Acurastem Receives CIRM Grant for Targeted Therapeutic Program for ALS/FTD

Biotechnology company AcuraStem announced that it has received a $4 million grant from the California Institute for Regenerative Medicine (CIRM) for its targeted therapeutic program for ALS and FTD. The…

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Dear HelpLine: Social Security Benefits for People with FTD

Dear HelpLine, My dad is 55 and had to leave his job after he was diagnosed with FTD. Are there Social Security benefits that we are eligible for? As a…

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AFTD Ambassador Completes Two-Month Cross-Country Bike Ride for FTD Awareness

AFTD Ambassador Spencer Cline wanted to raise FTD awareness and honor the memory of his father. Lawrence Cline was diagnosed with FTD at age 50 and died in 2012, when…

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Guest Feature: Creating Opportunities of Liberation and Hope on the FTD Journey

The FTD journey is difficult for families due to its distressing symptoms and the sweeping life changes that are often required to adapt to them. Families often find that there…

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U.K. Man Discusses FTD Caregiving with BBC and Yahoo! Life

An FTD caregiver in the United Kingdom spoke about the disease’s emotional and financial impact in recent interviews with the BBC and Yahoo! Life. Gareth Heslop, of Sheffield, UK, said…

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