Advancing Hope: AFTD-personeel aanwezig op de Internationale Conferentie van de Alzheimer's Association 2023
Senior Director of Scientific Initiatives Penny Dacks, PhD, en Director of Research and Grants Debra Niehoff, PhD, vertegenwoordigden AFTD op de Alzheimer's Association International Conference 2023, die op 14 en 15 juli in Amsterdam, Nederland, werd gehouden. De conferentie bracht onderzoekers, professionals in de gezondheidszorg en specialisten uit de industrie samen om recente ontdekkingen en nieuwe best practices te delen voor de behandeling en preventie van neurodegeneratieve…
Lees verder13 september: Maandelijkse zorgpartnertraining over frontotemporale dementie
AFTD Director of Support & Education Esther Kane, MSN, RN-CDP, spreekt over FTD tijdens de septembereditie van de Monthly Care Partner Training-serie van Insight Memory Care Center. Het evenement vindt plaats op 13 september van 13:00 tot 14:30 uur ET. Bezoek de website van Insight Memory Care Center om u te registreren voor deze gratis hybride…
Lees verderMaandelijkse training voor zorgpartners: Frontotemporale dementie
AFTD Director of Support & Education Esther Kane, MSN, RN-CDP, spreekt over FTD tijdens de septembereditie van de Monthly Care Partner Training-serie van Insight Memory Care Center. Bezoek de website van Insight Memory Care Center om u te registreren voor dit gratis hybride evenement: er is een beperkt aantal fysieke deelnemers beschikbaar, of u kunt virtueel deelnemen via Zoom.
Lees verderWereld FTD Awareness Week 2023
World FTD United, an international coalition of FTD-focused organizations, wants to show the world how a dedicated global community can rally together for action, ensure that no one faces FTD alone, raise greater awareness, and advance research during World FTD Awareness Week 2023 (Sept. 24 – Oct. 1). If you want to get a head…
Lees verderStof tot nadenken 2023
Food for Thought is een fondsenwervende en bewustmakingscampagne aan de basis die zich richt op voedsel- en FTD-educatie. Food for Thought wordt gehouden van 24 september tot 8 oktober 2023 en omvat de World FTD Awareness Week. Gedurende deze tijd nemen mensen over de hele wereld “Tijd met vrienden en familie. Actie ondernemen." Food for Thought-hosts vertellen hun verhalen en maken mensen persoonlijk bewust…
Lees verderAFTD-ambassadeur benadrukt de noodzaak van betere dementiezorg in podcast
Melissa Fisher, AFTD Ambassador and a senior strategic marketing consultant at Kaiser Permanente Northwest, shared the realities of being an FTD care partner while emphasizing emphasized the need for better dementia care pathways in an episode of VIE Healthcare’s podcast. Caregiving is difficult; most family care partners are unpaid, untrained, and often overwhelmed. Yet, care…
Lees verderAFTD en Passage Bio bespreken therapieën ontworpen voor FTD-GRN
AFTD recently spoke with Passage Bio Chief Executive Officer William Chou, M.D., about his colleagues’ work to develop an effective therapeutic designed to treat FTD-GRN. *Responses have been edited for clarity and length. Can you share some background on Passage Bio’s approach to developing an FTD-focused therapeutic? As we know, there are some forms…
Lees verderGastbijdrage: My Ohana – Nadenken over de nauwe banden die we opbouwen tijdens de FTD-reis
FTD symptoms and the stigma attached can make navigating the disease an isolating experience for people diagnosed, care partners, and family. Support groups are a common way for people on the FTD journey to connect with others and share their experiences. However, as AFTD Ambassador for Oregon Melissa Fisher shares, connecting with people through these…
Lees verderSchizofreniemedicijn vermindert de aggregatie van tau-eiwitten in cel- en muismodellen, zo blijkt uit onderzoek
Amisulpride, an antipsychotic drug, is capable of reducing aggregation of the tau protein in cell and mouse models, according to a study published earlier this year. While the drug could be a potential disease-modifying treatment for tau-based FTD, further trials with human participants are necessary. Tau is one of a few proteins that can accumulate…
Lees verderCommunity-evenement Duke Caregiver — 7 september 2023
AFTD Ambassador Jerry Lazarus and former AFTD Board member and support group facilitator Paul Lester will be hosting an AFTD exhibitor table at the Duke Caregiver Community Event in Durham, North Carolina. This in-person event offers insights from experts, and ways to connect caregivers to essential services and support systems. The Duke Caregiver Community Event…
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