AFTD collaborated with the international coalition World FTD United to produce a Wereldwijd gesprek op FTD, a four-hour long video of vital information and perspectives from around the world that premiered during World FTD Awareness Week 2021 (Sept. 26 – Oct. 3).

Getroffen mensen en gezinnen, gezondheidswerkers en onderzoekers dienden korte video's en verhalen in, waarin de geleefde ervaring van FTD werd vastgelegd, zorg- en ondersteuningsstrategieën werden aangeboden en redenen voor hoop werden gedeeld.

Also during World FTD Awareness Week, AFTD partnered with New York State Senator Michelle Hinchey for a virtuele infosessie over FTD. The session followed the recently adopted resolution, sponsored by Sen. Hinchey, designating Sept. 26 through Oct. 3 as FTD Awareness Week in New York.

“Voor de eerste keer ooit heeft de staat New York de FTD Awareness Week erkend door middel van een resolutie die wij naar voren hebben gebracht, omdat wij geloven dat het ongelooflijk belangrijk is dat meer mensen deze ziekte begrijpen,” zei senator Hinchey.

AFTD continued to promote FTD awareness with ads placed in the New York Times. Throughout World FTD Awareness Week, the Keer featured digital and print ads, created with input from AFTD volunteer Jody Zorn and designed to bring FTD awareness to millions. Print ads appeared in the Sept. 26 and Oct. 3 Sunday print editions, and visitors to the Keer website via a mobile device saw a powerful set of digital ads on Sept. 29.

AFTD’s flagship grassroots fundraising and awareness campaign, Stof tot nadenken, ran from Sept. 26 to Oct. 10. The campaign returned for its ninth year, raising critical funds in support of families affected by FTD.

Meanwhile, the #FDThotshot-uitdaging, a community-driven grassroots campaign, made its return for the second year — this time in official partnership with Food for Thought. The challenge, created by AFTD volunteers in 2020, rallied AFTD supporters and FTD advocates to raise awareness and funds for AFTD’s research initiatives. Participants were encouraged to film themselves taking a shot of hot sauce, tag five friends to join, and donate to support AFTD’s mission.