Empower Help & Hope deze #Giving dinsdag

Door Mike Mooney | 28 november 2024 |

Michele Howerter, whose mom Nancy is living with primary progressive aphasia, is sharing her family’s story for Giving Tuesday – a day to recognize and support mission-focused organizations worldwide. AFTD will once again participate in this annual campaign to raise awareness of FTD and funds to drive our work on behalf of all facing this…

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Advancing Hope: Gesponsorde testprogramma's; mogelijkheden voor gratis genetische tests

Door Mike Mooney | 28 november 2024 |
Text: Advancing Hope - Sponsored Testing Programs; opportunities for no-cost genetic testing. Background: A doctor consults with a patient

Once you have chosen to pursue genetic testing, it can be frustrating to learn that the cost is too high, or insurance will not cover genetic testing. Sponsored testing programs (STPs) provide the opportunity to access genetic testing at no-cost, removing financial barriers and enabling greater access to genetic counseling and testing. STPs are collaborations…

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Personen met FTD Adviesraad Speciaal Artikel: Vakantiegekte

Door Beth Velletri | 26 november 2024 |
Persons with FTD Advisory Council Special Article: Holiday Madness Photo of Cindy Odell smiling and wearing a gray, charcoal, black, red, and burgundy sweater.

This article was written by a person with FTD to highlight the challenges of dealing with the holidays with an FTD diagnosis. AFTD hopes care partners and those diagnosed can benefit from the perspective presented here. By Cindy Odell, former Council member All holidays can be stressful for anyone at any time. It doesn’t matter…

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All in the Family om FTD te beëindigen: Colonial Electric's Food for Thought-evenement haalt meer dan $1 miljoen op sinds de oprichting

Door Beth Velletri | 22 november 2024 |
Patricia "Trish" Bellwoar, who had FTD, smiles as she sits in a wheelchair being pushed by her husband, Joseph Bellwoar.

AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD for nearly 30 years. Since Steve’s initial Colonial Electric Food for Thought gathering in 2014, the event, which features a nine-hole golf tournament, cocktail hour,…

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Een gesprek met een neuroloog bij Denali Therapeutics

Door Matt Ozga | 22 november 2024 |
Graphic: A Conversation with a Neurologist at Denali Therapeutics. Background: A photo of Dr. Richard Tsai

Recently, AFTD had a conversation with members of the Denali Therapeutics team, including Dr. Richard Tsai, to provide insights into their work to develop a therapeutic with Takeda to treat FTD-GRN (frontotemporal dementia caused by GRN gene mutations). Dr. Tsai is a neurologist at Denali where he partners with other scientists to design and conduct…

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Dankzij de vrijgevigheid van de AFTD-ambassadeur ontvangen inwoners van Californië cruciale financiële hulp

Door Beth Velletri | 21 november 2024 |
AFTD Ambassador Terry Walter, of California, smiles in front of a red AFTD banner that says Every FTD Story Counts.

Terry Walter, an AFTD Ambassador in California and Nevada, has been a force for positive change and support since 2008, when she began volunteering for AFTD. Over the years she has organized golf tournaments, convened people affected by FTD through her Meet & Greet events, and raised funds for AFTD’s mission with her annual Food…

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AFTD-pleitbezorging: training in staatsresolutie

Door Matt Ozga | 20 november 2024 |

Deze training behandelt het proces van het verkrijgen van een resolutie — van het identificeren van uw wetgevers tot het ontvangen van uw goedgekeurde resolutie. Het behandelt ook persstrategieën om de zichtbaarheid te maximaliseren en meer bewustzijn voor FTD in uw staat te creëren. Deelnemers ontvangen en beoordelen het: 2025 Resolution Toolkit Resolution language Press toolkit Advocacy talking…

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