The Power of Advocacy
AFTD would like to highlight the power of advocacy in contributing to the greater awareness of FTD. This year’s World FTD Awareness Week was filled with contributions large and small by advocates who took their time to create awareness and fundraising events, who posted about FTD and AFTD on social media, and who worked with their legislators…
Lees verderDear HelpLine: Medication and FTD
Dear HelpLine, My mom has FTD and we have an upcoming appointment with her physician. We’d like to talk about medications to help with some of her symptoms. What should we know about medication and FTD? While there are currently no medications available that can slow or stop FTD’s progression, some drugs can be prescribed…
Lees verderPsilera Announces Positive Preclinical Data for FTD Intervention Candidate
Biotechnology company Psilera announced positive preclinical data for its FTD drug candidate, moving it another step towards first-in-human studies. The company also underscored promising data from efficacy studies conducted by the University of South Florida (USF). The drug, a compound called PSIL-006, is a psilocybin derivative that has a safe, non-hallucinogenic profile, making it a…
Lees verderAFTD Care Partner Learning Series Webinar: Navigating Behavioral Variant FTD Symptoms
Behavioral variant FTD, or bvFTD, makes up almost half of all FTD diagnoses. Behavioral symptoms can fundamentally alter one’s personality, which can be extremely distressing for the person diagnosed and challenging for care partners, family members, and friends. Learning about and understanding these symptoms can help care partners approach behaviors and support the person with…
Lees verderBeschermd: A Conversation with Alector’s Vice President of Clinical Development
Er is geen samenvatting, omdat dit een beschermd bericht is.
Lees verderIn-Person Meet & Greet in Danville, CA
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by AFTD volunteer Judy Price. RSVP for this event by emailing judyaprice1@icloud.com. To learn more, download this flyer.
Lees verderIn-Person Meet & Greet in Fairmont, WV
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by Debbie Elkins, AFTD Ambassador for West Virginia. RSVP for this event by emailing delkins@theaftd.org. To learn more, download this flyer.
Lees verderGastbijdrage: “Ja, en…” door Catherine Savini
Het navigeren door de symptomen van FTD kan moeilijk zijn voor dierbaren, vooral als iemand met de ziekte geheugenproblemen ervaart. Maar zoals Catherine Savini deelt, kan het beantwoorden van symptomen met "ja, en" in plaats van "nee, want" ontmoetingen met frustratie en isolatie veranderen in betekenisvolle momenten van speelsheid en verbinding. Onlangs vertelde een goede vriend me een...
Lees verderAls één stem klinkt als een koor: Dawn Kirby's meedogenloze campagne om FTD-bewustzijn te vergroten
Dawn Kirby en haar man, Tim, verspreiden het woord over FTD. Het stel werd onlangs genoemd in een artikel in de Prairie Press (Parijs, Ill.), waarin ze spraken over hun pleidooi voor FTD-bewustzijn. Dawn en Tim hebben goede herinneringen aan het zien van hun dochter, Kara Ike, die tot haar recht kwam in…
Lees verder26 oktober 2024: Persoonlijke Meet & Greet in Middletown, DE
Doe mee en leer van anderen die de FTD-reis begrijpen tijdens dit persoonlijke AFTD Meet & Greet-evenement, georganiseerd door AFTD-vrijwilliger Jeanne Cestone, dat plaatsvindt van 10:30 tot 11:30 uur op zaterdag 26 oktober 2024. Het evenement vindt plaats in de Appoquinimink Community Library in Middletown, Del. (204 E. Main Street). Meld je aan voor dit evenement…
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