The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Tuesday, July 30, 2024 | 3-4 p.m. ET

Working with Lawmakers to Highlight FTD

AFTD advocacy webinar

Advocate for Awareness:

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

AFTD Ambassador Spencer Cline and his future brother-in-law Paul are biking across America from Astoria, Oregon to Charleston, South Carolina to help support AFTD's mission and spread Help and Hope.

Spencer & Paul's Bike Across America for AFTD

Donate to Spencer & Paul's Fundraiser

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Graphic: Volunteer Update - AFTD Welcomes New Ambassadors. Photos of Shirley Gordon and Zoy Kocian.

Volunteer Update: AFTD Welcomes New AFTD Ambassadors

Since the AFTD Ambassador Program began in 2019, our initial cohort of volunteer leaders has grown into an enthusiastic and highly motivated group working toward a future free from FTD. AFTD is…

A Conversation with Olga Uspenskaya, MD, PhD, of Prevail Therapeutics

Recently, Prevail Therapeutics presented interim results from their Phase 1/2 open-label clinical trial assessing the safety and efficacy of their gene therapy to raise progranulin levels in people with FTD-GRN.…

Passage Bio Receives Positive Feedback from FDA on Expanding Gene Therapy to C9orf72

Biopharmaceutical company Passage Bio announced on July 16 that it has received positive feedback from the U.S. Food and Drug Administration (FDA) regarding a proposal to expand its clinical trial…

Graphic: Research Explains the Role of Genetics in FTD, Discusses Avenues for Treatment.

Researcher Explains the Role of Genetics in FTD, Discusses Avenues for Treatment

In an article written for The Conversation, Fen-Biao Gao, PhD, professor and founding director of the FTD Research Center at the University of Massachusetts Chan Medical School, discusses how research…

Managing a Diagnosis: Brian’s FTD Story

In 2020, when Brian Dowden was in his late 30s, he noticed changes in his cognitive abilities while preparing to take the licensing exams required by his profession. “It was…

British/Dutch Study Discovers Role of ANG Gene Mutations in ALS-FTD

Researchers at the University of Bath in the United Kingdom and the University Medical Center Utrecht in the Netherlands have uncovered an association between an inherited genetic variant of the…

AFTD and ALLFTD Collaborate on Brain Donation Video

AFTD and ALLFTD have partnered to create a brief animated video that explains the brain donation process, as well as how it helps FTD researchers and families affected by FTD.…

Dear HelpLine: Support for Familial and Genetic FTD

Dear HelpLine, My mom was recently diagnosed with FTD; my late uncle and grandmother had dementia, and I’m concerned that this may be genetic. Is there support for people facing…

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