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FTD Science Digest: Making FTD Visible – The Critical Role of Biomarkers in Diagnosis and Treatment

Biomarkers are critical to understanding and treating any disease. A biomarker is something measurable in the body that can indicate a disease’s presence and severity. High blood pressure, for example,…

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FTD Research Spotlight: Making FTD visible by investing in diagnostic biomarkers: a new funding opportunity

FTD researchers know the importance of identifying and validating usable biomarkers for FTD – and just how complex these tasks are.  FTD-specific biomarkers could help to achieve many unmet needs…

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Dear HelpLine: Looking for Support Options

Dear HelpLine, My brother was diagnosed with FTD. I see that AFTD offers support groups, but I’m not sure who they are for, or which one is right for me.…

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Study Examines Nature of Criminal Risk Behaviors in Dementia

An Australian Study uses an experimental screening tool to examine the propensity and nature of criminal risk behaviors in dementias like FTD. While further research is needed to better understand…

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March 26, 2025: In-Person Meet & Greet in San Francisco

Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Jenna Goldman. The event will take place on…

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March 23, 2025: In-Person Meet & Greet in Roseville, CA

Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event on Sunday, March 23, from 3:30 to 5:30 p.m PT. Hosted by…

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Statement from The Association for Frontotemporal Degeneration (AFTD) on Disruption of Scientific Research Funding and Activities

The Association for Frontotemporal Degeneration (AFTD) is deeply concerned about recent policy changes and layoffs at the National Institutes of Health (NIH) that greatly disrupt biomedical research of high importance…

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Guest Feature: The Story Behind the Story – Our Journey Through FTD and Why I Wrote “Welcome to the Honey B & B”

Novelist Melody Carlson drew from her family’s FTD story to write her latest book, Welcome to the Honey B & B, which will be released on March 4 by Baker…

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AFTD Webinar: At the Intersection of FTD and the Law

FTD can present with executive dysfunction, impulsivity, loss of empathy, apathy, and disinhibition. At times, these symptoms can lead to interactions with police, whether responding to an incident at home…

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Passage Bio Announces Interim Data for UpliFT-D Trial for FTD-GRN

Biotechnology company Passage Bio released interim data for its upliFT-D clinical trial for its gene replacement therapy for FTD-GRN and announced that it is on track to expand the trial…

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