What's New

Persons with FTD Advisory Council Special Article: Holiday Madness

This article was written by a person with FTD to highlight the challenges of dealing with the holidays with an FTD diagnosis. AFTD hopes care partners and those diagnosed can…

Read More about Persons with FTD Advisory Council Special Article: Holiday Madness

All in the Family to end FTD: Colonial Electric’s Food for Thought Event Clears More than $1 Million Since Inception

AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD…

Read More about All in the Family to end FTD: Colonial Electric’s Food for Thought Event Clears More than $1 Million Since Inception

A Conversation with a Neurologist at Denali Therapeutics

Recently, AFTD had a conversation with members of the Denali Therapeutics team, including Dr. Richard Tsai, to provide insights into their work to develop a therapeutic with Takeda to treat…

Read More about A Conversation with a Neurologist at Denali Therapeutics

Thanks to Generosity of AFTD Ambassador, Californians Receive Crucial Financial Help

Terry Walter, an AFTD Ambassador in California and Nevada, has been a force for positive change and support since 2008, when she began volunteering for AFTD. Over the years she…

Read More about Thanks to Generosity of AFTD Ambassador, Californians Receive Crucial Financial Help

AFTD Care Partner Learning Series Webinar: Navigating the Holidays with an FTD Diagnosis

The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences.…

Read More about AFTD Care Partner Learning Series Webinar: Navigating the Holidays with an FTD Diagnosis

Young Caregiver Talks About Finding Support Amid FTD Journey on Dementia UK Podcast

A young FTD caregiver named Lizzie discussed the grief, uncertainty, and unexpected responsibilities she faced as she cared for her father — all while navigating the natural changes of young…

Read More about Young Caregiver Talks About Finding Support Amid FTD Journey on Dementia UK Podcast

Advancing Hope: AFTD Staff Attend NORD Breakthrough Summit in Washington, DC

Shana Dodge, PhD, AFTD’s Director of Research Engagement and Meghan Buzby, MBA, AFTD’s Director of Advocacy and Volunteer Engagement attended the National Organization for Rare Disorders (NORD) Breakthrough Summit, held…

Read More about Advancing Hope: AFTD Staff Attend NORD Breakthrough Summit in Washington, DC

GemVax & KAEL Announces Results from Phase 2a Clinical Trial for PSP

South Korean biopharmaceutical company GemVax & Kael announced in late October the results from its phase 2a clinical trial evaluating a drug for PSP. While the drug failed to show…

Read More about GemVax & KAEL Announces Results from Phase 2a Clinical Trial for PSP

Dear HelpLine: Navigating Travel During the Holidays

Dear HelpLine, I am thinking of traveling to see family this year for the holidays, but this would be the first time taking my wife since she was diagnosed with…

Read More about Dear HelpLine: Navigating Travel During the Holidays