La "conversazione globale" mette in evidenza la settimana mondiale di sensibilizzazione sulla FTD 2021

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AFTD collaborated with the international coalition World FTD United to produce a Conversazione globale su FTD, a four-hour long video of vital information and perspectives from around the world that premiered during World FTD Awareness Week 2021 (Sept. 26 – Oct. 3).

Le persone e le famiglie colpite, gli operatori sanitari e i ricercatori hanno inviato brevi video e storie, catturando l’esperienza vissuta della FTD, offrendo strategie di cura e supporto e condividendo ragioni di speranza.

Also during World FTD Awareness Week, AFTD partnered with New York State Senator Michelle Hinchey for a sessione informativa virtuale su FTD. The session followed the recently adopted resolution, sponsored by Sen. Hinchey, designating Sept. 26 through Oct. 3 as FTD Awareness Week in New York.

"Per la prima volta in assoluto, lo stato di New York ha riconosciuto la Settimana di sensibilizzazione alla FTD attraverso una risoluzione che abbiamo presentato perché crediamo che sia incredibilmente importante che più persone comprendano questa malattia", ha affermato il senatore Hinchey.

AFTD continued to promote FTD awareness with ads placed in the New York Times. Throughout World FTD Awareness Week, the Volte featured digital and print ads, created with input from AFTD volunteer Jody Zorn and designed to bring FTD awareness to millions. Print ads appeared in the Sept. 26 and Oct. 3 Sunday print editions, and visitors to the Volte website via a mobile device saw a powerful set of digital ads on Sept. 29.

AFTD’s flagship grassroots fundraising and awareness campaign, Cibo per la mente, ran from Sept. 26 to Oct. 10. The campaign returned for its ninth year, raising critical funds in support of families affected by FTD.

Meanwhile, the #FTDsfida hotshot, a community-driven grassroots campaign, made its return for the second year — this time in official partnership with Food for Thought. The challenge, created by AFTD volunteers in 2020, rallied AFTD supporters and FTD advocates to raise awareness and funds for AFTD’s research initiatives. Participants were encouraged to film themselves taking a shot of hot sauce, tag five friends to join, and donate to support AFTD’s mission.

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