Potenzia Aiuto e Speranza questo martedì #Giving
Michele Howerter, whose mom Nancy is living with primary progressive aphasia, is sharing her family’s story for Giving Tuesday – a day to recognize and support mission-focused organizations worldwide. AFTD will once again participate in this annual campaign to raise awareness of FTD and funds to drive our work on behalf of all facing this…
Per saperne di piùPromuovere la speranza: programmi di test sponsorizzati; opportunità di test genetici gratuiti
Once you have chosen to pursue genetic testing, it can be frustrating to learn that the cost is too high, or insurance will not cover genetic testing. Sponsored testing programs (STPs) provide the opportunity to access genetic testing at no-cost, removing financial barriers and enabling greater access to genetic counseling and testing. STPs are collaborations…
Per saperne di piùFerrer somministra il primo farmaco al partecipante allo studio di fase 2 per il trattamento della PSP
Pharmaceutical company Ferrer announced that it has dosed the first participant in the PROSPER phase 2 clinical trial for an experimental treatment for progressive supranuclear palsy. The ongoing trial seeks to evaluate the safety and efficacy of the drug FNP-223, which is designed to slow the progression of the disease. The drug works to prevent…
Per saperne di piùArticolo speciale del Consiglio consultivo per le persone con FTD: Holiday Madness
This article was written by a person with FTD to highlight the challenges of dealing with the holidays with an FTD diagnosis. AFTD hopes care partners and those diagnosed can benefit from the perspective presented here. By Cindy Odell, former Council member All holidays can be stressful for anyone at any time. It doesn’t matter…
Per saperne di piùAll in the Family mette fine a FTD: l'evento Food for Thought di Colonial Electric incassa più di $1 milioni dall'inizio
AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD for nearly 30 years. Since Steve’s initial Colonial Electric Food for Thought gathering in 2014, the event, which features a nine-hole golf tournament, cocktail hour,…
Per saperne di piùUna conversazione con un neurologo presso Denali Therapeutics
Recently, AFTD had a conversation with members of the Denali Therapeutics team, including Dr. Richard Tsai, to provide insights into their work to develop a therapeutic with Takeda to treat FTD-GRN (frontotemporal dementia caused by GRN gene mutations). Dr. Tsai is a neurologist at Denali where he partners with other scientists to design and conduct…
Per saperne di piùGrazie alla generosità dell'ambasciatore AFTD, i californiani ricevono un aiuto finanziario fondamentale
Terry Walter, an AFTD Ambassador in California and Nevada, has been a force for positive change and support since 2008, when she began volunteering for AFTD. Over the years she has organized golf tournaments, convened people affected by FTD through her Meet & Greet events, and raised funds for AFTD’s mission with her annual Food…
Per saperne di piùProtetto: A Conversation with a Neurologist at Denali Therapeutics
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Per saperne di piùWebinar della serie di apprendimento per i partner di assistenza AFTD: come affrontare le festività con una diagnosi di FTD
The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences. In this webinar, AFTD HelpLine Manager Stephanie Quigley leads a discussion with members of AFTD’s Persons with FTD Advisory Council as they share ideas and…
Per saperne di piùAFTD Advocacy: Formazione sulla risoluzione statale
Questa formazione coprirà il processo di come ottenere una risoluzione, dall'identificazione dei legislatori alla ricezione della risoluzione approvata. Coprirà anche le strategie di stampa per massimizzare la visibilità e promuovere una maggiore consapevolezza per FTD nel tuo stato. I partecipanti riceveranno e rivedranno: 2025 Resolution Toolkit Resolution language Press toolkit Advocacy talking…
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