Gestire una diagnosi: la storia di FTD di Brian
In 2020, when Brian Dowden was in his late 30s, he noticed changes in his cognitive abilities while preparing to take the licensing exams required by his profession. “It was supposed to be an easy test for the most part,” he said. “I started studying and immediately began to struggle. I just couldn’t retain the…
Per saperne di piùExpo per anziani della contea di Lorain
AFTD volunteer Sharon Land will be hosting an information table at the Lorain County Senior Expo on September 10 from 10 AM-1 PM EDT. Go to the event website to learn more or register.
Per saperne di piùSalute mentale nelle comunità sottorappresentate: ridurre lo stigma e superare le barriere
AFTD volunteer Sharon Land will be hosting an information table at the event Mental Health in Underrepresented Communities: Reducing Stigma & Overcoming Barriers, being held at the YWCA of Elyria on Wednesday, July 31 from 12-2 PM EDT. Visit the event webpage to learn more or register.
Per saperne di piùUno studio britannico/olandese scopre il ruolo delle mutazioni del gene ANG nella SLA-FTD
Researchers at the University of Bath in the United Kingdom and the University Medical Center Utrecht in the Netherlands have uncovered an association between an inherited genetic variant of the angiogenin (ANG) gene and ALS-FTD, according to a study published in The Journal of Pathology. It is now recognized that a pathogenic expansion of the…
Per saperne di piùAFTD e ALLFTD collaborano al video sulla donazione del cervello
AFTD and ALLFTD have partnered to create a brief animated video that explains the brain donation process, as well as how it helps FTD researchers and families affected by FTD. Discussing brain donation can be difficult for families, so beginning the conversation early can provide family members with the time to consider options, share preferences,…
Per saperne di piùGentile HelpLine: supporto per FTD familiare e genetica
Dear HelpLine, My mom was recently diagnosed with FTD; my late uncle and grandmother had dementia, and I’m concerned that this may be genetic. Is there support for people facing uncertain genetic status? Most people diagnosed with FTD have a sporadic form of the disorder, meaning there is no apparent familial history of neurodegenerative disease.…
Per saperne di piùSostenitore della sensibilizzazione: collaborare con i legislatori per evidenziare l'FTD
I sostenitori dell'FTD possono contribuire a sensibilizzare le loro comunità collaborando con i legislatori per emettere proclami e risoluzioni che designano una settimana di sensibilizzazione sull'FTD a livello statale. Ma cosa sono i proclami e le risoluzioni e come possono i sostenitori spingerli per ottenerli? In questo webinar di advocacy, lo staff dell'AFTD spiegherà la differenza e condividerà i passaggi che puoi intraprendere...
Per saperne di piùFTD: L'altra demenza
L'Ambasciatrice dell'AFTD Nanci Anderson fornirà una panoramica dell'FTD, insieme alle risorse disponibili nelle Twin Cities e dall'AFTD. Scarica questo volantino per saperne di più.
Per saperne di più17 luglio 2024 — FTD: L'altra demenza
AFTD Ambassador Nanci Anderson will provide an overview of FTD, along with available resources available in the Twin Cities and from AFTD. The event will take place on July 17, 2024, from 10:30 a.m. – 11:30 a.m. CT. It will be located at the Plymouth Community Center’s Education Wing (Classroom 1C), at 14800 34th Avenue…
Per saperne di piùVesper Bio completa la fase a dose singola ascendente della sperimentazione clinica per un potenziale trattamento modificante la malattia per la FTD-GRN
Biotechnology company Vesper Bio announces it has completed the single ascending dose stage in its clinical trial of its potentially disease-modifying treatment for FTD-GRN. The recently completed trial evaluated the safety and tolerability of the orally administered drug VES001 in people without FTD. The goal of the single ascending dose stage was to determine how…
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