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AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
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Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Find a Support Group for Care Partners Near You
Support groups are a resource and a place to connect and share with others who understand.
PLEASE NOTE: In response to the COVID-19 pandemic, many support groups are now available to meet via AFTD’s dedicated and secure Zoom account. Learn more about how your local group is meeting by contacting your local support group volunteer, or by reaching AFTD’s HelpLine at (1-866-507-7222, info@theaftd.org).
Virtual & National Groups
Contact a Medical Center
FTD-oriented medical centers can offer diagnosis, guidance, and connections to research opportunities.
Medical Centers In Surrounding States
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting your AFTD Volunteer Engagement Coordinator at cjohnson@theaftd.org
Carrie Johnson
cjohnson@theaftd.org
(Click here to learn more about Carrie Johnson’s connection with AFTD)
You can also contact a volunteer local to you to find out more: AFTD Ambassadors are volunteer leaders who represent AFTD in communities and states across the United States. They raise awareness of FTD through networking, outreach, speaking engagements and attending events on behalf of AFTD.
Melissa Fisher
mfisher@theaftd.org
(Click here to learn more about Melissa Fisher’s connection with FTD)
Sign Up To Receive AFTD Alerts
News & Events Near You
Volunteer Update: AFTD Welcomes New AFTD Ambassadors
Since the AFTD Ambassador Program began in 2019, our initial cohort of volunteer leaders has grown into an enthusiastic…
A Conversation with Olga Uspenskaya, MD, PhD, of Prevail Therapeutics
Recently, Prevail Therapeutics presented interim results from their Phase 1/2 open-label clinical trial assessing the safety and…
Passage Bio Receives Positive Feedback from FDA on Expanding Gene Therapy to C9orf72
Biopharmaceutical company Passage Bio announced on July 16 that it has received positive feedback from the U.S….
Researcher Explains the Role of Genetics in FTD, Discusses Avenues for Treatment
In an article written for The Conversation, Fen-Biao Gao, PhD, professor and founding director of the FTD…
British/Dutch Study Discovers Role of ANG Gene Mutations in ALS-FTD
Researchers at the University of Bath in the United Kingdom and the University Medical Center Utrecht in…
Dear HelpLine: Support for Familial and Genetic FTD
Dear HelpLine, My mom was recently diagnosed with FTD; my late uncle and grandmother had dementia, and…
July 17, 2024 — FTD: The Other Dementia
AFTD Ambassador Nanci Anderson will provide an overview of FTD, along with available resources available in the…
Vesper Bio Completes Single Ascending Dose Stage of Its Clinical Trial for Potential Disease Modifying Treatment for FTD-GRN
Biotechnology company Vesper Bio announces it has completed the single ascending dose stage in its clinical trial…
Delaware Passes Resolution Recognizing FTD Awareness Week 2024
Delaware became the third state to officially recognize FTD Awareness Week 2024 (September 22-29) after its Senate…
Advocacy Update: Join AFTD in Advocating for FTD Awareness Week in All 50 States
This past May, AFTD staff and other FTD advocates traveled to New York and California to celebrate…