Volunteer With Us

Become a Volunteer

Or call us at 866-507-7222 and ask to speak with a Volunteer Engagement Coordinator.

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Five simple steps to become an AFTD Volunteer:

  1. Fill out the online volunteer form and submit.
  2. A volunteer engagement coordinator will reach out within 24 business hours to arrange a time to meet via Zoom or by phone.
  3. If it’s a good volunteer match, sign up for our volunteer orientation (see dates here).
  4. After volunteer orientation, sign an agreement and receive additional activity-specific training.
  5. Start helping AFTD in its mission of offering help and hope to those affected by FTD!

“I just want my wife’s death to FTD to mean something, and I’d like to give back so more people understand this disease.”

Kenneth “K.C.” McCullough, AFTD Volunteer, Virginia

“I couldn’t defeat FTD but I can walk beside others as they navigate the journey and that is powerful. My life is richer because of my Support Group family.”

Marian Grems, Support Group Volunteer, Ohio

“I volunteer because it’s so important to spread awareness so that people who have the disease and their caregivers get the support they need. When we do find a cure, the public will know what this disease is and they can avail themselves of that.”

Susan Eissler, AFTD Ambassador, Central Texas

“I volunteer and network with other families experiencing FTD because it is therapeutic for me, a coping mechanism for my grief, if you will. I know then that I’m not alone in this.”

Brian Fox, AFTD Volunteer, Nebraska

“It is, truly, very fulfilling to be a part of AFTD. What a terrific organization that allows many to volunteer in a meaningful way.”

Sandy Cannon, AFTD Volunteer

"I am honored by the trust others put in me when sharing their fears, challenges, and small victories. Volunteering for AFTD has given me the opportunity to pay it forward."

Marian Grems, AFTD Support Group Volunteer

Connect with AFTD's Volunteer Coordinators

Contact them at volunteer@theaftd.org

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Hannah Gruen

Carrie Johnson

Carrie Johnson

Or call us at 866-507-7222 and ask to speak with a Volunteer Engagement Coordinator.