Advocacy Action Center
Help Increase Awareness of FTD Today!
Looking to raise FTD awareness in your state? State Resolutions and Proclamations are a great way to get started! A resolution is a non-legal declaration designating a period of time to commemorate an event or cause. A proclamation is an official public statement that may not require a legislative vote. Securing either or both in your state would help increase awareness of FTD, foster working relationships with your local politicians, and build the groundwork for shaping policies that will increase funding and improve care.
You can help make this happen! The Resolution Toolkit will tell you how to advocate for your legislators to commemorate September 22-29, 2024 as FTD Awareness Week in your state. In this kit you will find: Information on Resolutions, Steps to Secure a Resolution, A Sample Outreach Email, and Sample Resolution Text.
The Proclamation Toolkit will help you secure one in your state, city or town to recognize FTD Awareness Week. This kit includes information about Proclamations, Steps to Obtain a Proclamation, Sample Emails and Text.
Pursuing a resolution or a proclamation is a great way to increase awareness and get started advocating for FTD. The first step for either one is to contact AFTD at advocacy@theaftd.org to let us know your plans.
Our Current Campaigns
NAPA Reauthorization Act
The National Alzheimer’s Project Act (NAPA) is scheduled to sunset, or expire, in 2025. The National Alzheimer’s Project Reauthorization Act (H.R. 619 / S. 133) would extend NAPA for another ten years until 2035 and enable the momentum and progress we’ve seen over the last decade to continue. With the first clinical trials for FTD currently underway, it is imperative that the National Alzheimer’s Project continues until there is better care and treatment for FTD and all types of dementia included in NAPA. Please help maintain the momentum - contact your elected officials today and urge them to advance the NAPA Reauthorization Act.
Click on the tile below to Take Action Now!
What is an advocate?
An advocate engages and educates elected officials on key issues. Whatever your political affiliation, our advocates are just like you – people who care about FTD, who want their elected officials to do more to address the impact of this disease, and who are ready to make a difference.
We advocate for legislative, policy, and regulatory changes to improve quality of care and quality of life for people with FTD and their families through:
- improving dementia care and services; ensuring they are inclusive of FTD disorders
- increasing access to dementia diagnosis and community-based care
- expanding funding for medical research and public programs serving people with dementia and their caregivers
Now is the time to join us in persuading our policymakers to take direct action on these crucial matters.
Become an AFTD Advocate!
You don’t need to be an expert in policy to become an advocate – just your voice and a commitment to making a difference. By adding your voice to our efforts to inform legislators and policymakers about FTD, you can help influence policy and legislation related to medical research, caregiving, and dementia care and services that impact the FTD community.
Click on the Capitol to Sign-up Now!
Comments from AFTD on Policy
August 30, 2023: AFTD provides input to CMS on GUIDE Model for dementia care
August 15, 2023: AFTD submits comments to ACL on updated regulations of the Older Americans Act advocating for expanded access for people under 60 with FTD
August 11, 2023: AFTD Ambassadors Offer Insights at July NAPA Meeting
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