The Association for Frontotemporal Degeneration

AFTD Ambassador Spencer Cline and his future brother-in-law Paul are biking across America from Astoria, Oregon to Charleston, South Carolina to help support AFTD's mission and spread Help and Hope.

Spencer & Paul's Bike Across America for AFTD

Donate to Spencer & Paul's Fundraiser

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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Action

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

AFTD Grant Recipient Discusses Gene Therapy for FTD-GRN on Canadian TV

In an interview with the Canadian Broadcasting Corporation, Dr. Simon Ducharme of McGill University in Montreal discussed his recent administration of an experimental gene therapy to mitigate the progression of…

AFTD Volunteers showing off their proclamations!

AFTD Volunteers Achieve FTD Awareness Week in 5 More States

In recent weeks, AFTD volunteers have successfully lobbied legislators to declare September 22-29, 2024, as FTD Awareness Week in Maryland, Ohio, Oklahoma, Tennessee, and West Virginia. They join New York,…

Dear HelpLine: Transitioning to Facility Care

Dear HelpLine, We have just made the difficult decision to move my mom into facility care not far from home. We are all new to this, what can we expect…

AFTD, Penn FTD Center, CLRI logos. Text: Welcome FTD CRLI Research Ambassador Program, June 2024.

Advancing Hope: AFTD and University of Pennsylvania Host FTD Workshop

On June 11, 2024, AFTD collaborated with the University of Pennsylvania Frontotemporal Degeneration (FTD) Center on the FTD Clinical Research Learning Institute (CRLI) Research Ambassador Program, a one-day virtual FTD…

FBLI - Working with Lawmakers to Highlight FTD

AFTD Webinar: Advocate for Awareness — Working with Lawmakers to Highlight FTD

FTD advocates can help bring awareness to their communities by working with lawmakers to issue proclamations and resolutions designating a statewide FTD awareness week. But what are proclamations and resolutions,…

Title: ASPIRE-FTD Phase 1/2 Clinical Opens First US Site at Ohio State University - Ohio State University campus in background.

ASPIRE-FTD Phase 1/2 Clinical Trial Opens First US Site at Ohio State University

Biopharmaceutical company AviadoBio announced on July 1 that its ASPIRE-FTD phase 1/2 clinical trial has opened its first trial site in the United States, at Ohio State University’s Wexner Medical…

AFTD Ambassador Reaches Midway Point of Coast-to-Coast Bike Ride to Raise FTD Awareness

KCTV, the CBS affiliate in Kansas City, Mo., aired an interview with AFTD Ambassador Spencer Cline, who recently reached the halfway point of his cross-country bike ride to raise awareness…

Tips & Advice: Finding Answers – FTD Research and You

When Damian McNamara, a staff writer for WebMD, learned that his cousin had been diagnosed with ALS and FTD due to a C9orf72 genetic variant, he began to wonder if…

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