What's New

AviadoBio CEO Emphasizes Collaborative Approach for Treating FTD

In October, U.K.-based gene therapy company AviadoBio, Ltd., and pharmaceutical company Astellas announced an exclusive option and license agreement for an investigational therapeutic, AVB-101, which is currently in a Phase…

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January 11, 2025: In-Person Meet & Greet in Middlesex, N.J.

Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Norma Edom and AFTD Ambassador Sandra Gonzalez-Morett at…

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Dear HelpLine: Types of FTD

Dear HelpLine, My mom was recently diagnosed with FTD, and when I visited your website, I learned that there are several types of FTD. My mom wasn’t diagnosed with a…

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Advancing Hope: AFTD Develops New Gene Therapy Resource

There is more hope now than ever before that researchers will be able to develop a treatment for FTD. Much research is underway to understand FTD better, treat the symptoms,…

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January 6, 2025: National Virtual Meet & Greet

Join this first-ever national Meet & Greet event specifically for people living with FTD. This virtual event will be held over Zoom on January 6 from 7-8 p.m. ET, and…

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January 23, 2025: In-Person Meet & Greet in Fort Wayne, Ind.

Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Kathleen Hanold Watland, who will soon be starting…

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Empower Help & Hope this #Giving Tuesday

Michele Howerter, whose mom Nancy is living with primary progressive aphasia, is sharing her family’s story for Giving Tuesday – a day to recognize and support mission-focused organizations worldwide. AFTD…

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Advancing Hope: Sponsored Testing Programs; opportunities for no-cost genetic testing

Once you have chosen to pursue genetic testing, it can be frustrating to learn that the cost is too high, or insurance will not cover genetic testing. Sponsored testing programs…

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Ferrer Doses First Participant in Phase 2 Study for PSP Treatment

Pharmaceutical company Ferrer announced that it has dosed the first participant in the PROSPER phase 2 clinical trial for an experimental treatment for progressive supranuclear palsy. The ongoing trial seeks…

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Persons with FTD Advisory Council Special Article: Holiday Madness

This article was written by a person with FTD to highlight the challenges of dealing with the holidays with an FTD diagnosis. AFTD hopes care partners and those diagnosed can…

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