Gérer un diagnostic : l'histoire FTD de Brian
In 2020, when Brian Dowden was in his late 30s, he noticed changes in his cognitive abilities while preparing to take the licensing exams required by his profession. “It was supposed to be an easy test for the most part,” he said. “I started studying and immediately began to struggle. I just couldn’t retain the…
Lire la suiteLorain County Senior Expo
AFTD volunteer Sharon Land will be hosting an information table at the Lorain County Senior Expo on September 10 from 10 AM-1 PM EDT. Go to the event website to learn more or register.
Lire la suiteMental Health in Underrepresented Communities: Reducing Stigma & Overcoming Barriers
AFTD volunteer Sharon Land will be hosting an information table at the event Mental Health in Underrepresented Communities: Reducing Stigma & Overcoming Barriers, being held at the YWCA of Elyria on Wednesday, July 31 from 12-2 PM EDT. Visit the event webpage to learn more or register.
Lire la suiteUne étude anglo-néerlandaise découvre le rôle des mutations du gène ANG dans la SLA-FTD
Researchers at the University of Bath in the United Kingdom and the University Medical Center Utrecht in the Netherlands have uncovered an association between an inherited genetic variant of the angiogenin (ANG) gene and ALS-FTD, according to a study published in The Journal of Pathology. It is now recognized that a pathogenic expansion of the…
Lire la suiteL'AFTD et l'ALLFTD collaborent sur une vidéo sur le don de cerveau
AFTD and ALLFTD have partnered to create a brief animated video that explains the brain donation process, as well as how it helps FTD researchers and families affected by FTD. Discussing brain donation can be difficult for families, so beginning the conversation early can provide family members with the time to consider options, share preferences,…
Lire la suiteChère HelpLine : Prise en charge du FTD familial et génétique
Dear HelpLine, My mom was recently diagnosed with FTD; my late uncle and grandmother had dementia, and I’m concerned that this may be genetic. Is there support for people facing uncertain genetic status? Most people diagnosed with FTD have a sporadic form of the disorder, meaning there is no apparent familial history of neurodegenerative disease.…
Lire la suitePlaider pour la sensibilisation : Travailler avec les législateurs pour mettre en lumière le FTD
Les défenseurs du FTD peuvent contribuer à sensibiliser leurs communautés en travaillant avec les législateurs pour publier des proclamations et des résolutions désignant une semaine de sensibilisation au FTD à l'échelle de l'État. Mais que sont les proclamations et les résolutions, et comment les défenseurs peuvent-ils les promouvoir ? Dans ce webinaire de plaidoyer, le personnel de l'AFTD expliquera la différence et partagera les étapes que vous pouvez suivre…
Lire la suiteFTD : l’autre démence
L'ambassadrice de l'AFTD, Nanci Anderson, donnera un aperçu de FTD, ainsi que des ressources disponibles dans les villes jumelles et auprès de l'AFTD. Téléchargez ce dépliant pour en savoir plus.
Lire la suite17 juillet 2024 — FTD : L'autre démence
AFTD Ambassador Nanci Anderson will provide an overview of FTD, along with available resources available in the Twin Cities and from AFTD. The event will take place on July 17, 2024, from 10:30 a.m. – 11:30 a.m. CT. It will be located at the Plymouth Community Center’s Education Wing (Classroom 1C), at 14800 34th Avenue…
Lire la suiteVesper Bio achève l'étape de dose unique croissante de son essai clinique pour un traitement potentiel modificateur de la maladie pour le FTD-GRN
Biotechnology company Vesper Bio announces it has completed the single ascending dose stage in its clinical trial of its potentially disease-modifying treatment for FTD-GRN. The recently completed trial evaluated the safety and tolerability of the orally administered drug VES001 in people without FTD. The goal of the single ascending dose stage was to determine how…
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