The Power of Advocacy
AFTD would like to highlight the power of advocacy in contributing to the greater awareness of FTD. This year’s World FTD Awareness Week was filled with contributions large and small by advocates who took their time to create awareness and fundraising events, who posted about FTD and AFTD on social media, and who worked with their legislators…
Lire la suiteDear HelpLine: Medication and FTD
Dear HelpLine, My mom has FTD and we have an upcoming appointment with her physician. We’d like to talk about medications to help with some of her symptoms. What should we know about medication and FTD? While there are currently no medications available that can slow or stop FTD’s progression, some drugs can be prescribed…
Lire la suitePsilera Announces Positive Preclinical Data for FTD Intervention Candidate
Biotechnology company Psilera announced positive preclinical data for its FTD drug candidate, moving it another step towards first-in-human studies. The company also underscored promising data from efficacy studies conducted by the University of South Florida (USF). The drug, a compound called PSIL-006, is a psilocybin derivative that has a safe, non-hallucinogenic profile, making it a…
Lire la suiteAFTD Care Partner Learning Series Webinar: Navigating Behavioral Variant FTD Symptoms
Behavioral variant FTD, or bvFTD, makes up almost half of all FTD diagnoses. Behavioral symptoms can fundamentally alter one’s personality, which can be extremely distressing for the person diagnosed and challenging for care partners, family members, and friends. Learning about and understanding these symptoms can help care partners approach behaviors and support the person with…
Lire la suiteProtégé : A Conversation with Alector’s Vice President of Clinical Development
Il n’y a pas d’extrait, car cette publication est protégée.
Lire la suiteIn-Person Meet & Greet in Danville, CA
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by AFTD volunteer Judy Price. RSVP for this event by emailing judyaprice1@icloud.com. To learn more, download this flyer.
Lire la suiteIn-Person Meet & Greet in Fairmont, WV
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by Debbie Elkins, AFTD Ambassador for West Virginia. RSVP for this event by emailing delkins@theaftd.org. To learn more, download this flyer.
Lire la suiteDossier invité : « Oui, et… » de Catherine Savini
Il peut être difficile pour les proches de gérer les symptômes de la DFT, surtout lorsqu’une personne atteinte de cette maladie éprouve des problèmes de mémoire. Cependant, comme le souligne Catherine Savini, répondre aux symptômes par « oui et » au lieu de « non, parce que » peut transformer les moments de frustration et d’isolement en moments significatifs de jeu et de connexion. Récemment, un ami proche me racontait une histoire…
Lire la suiteQuand une voix résonne comme un chœur : la campagne acharnée de Dawn Kirby pour sensibiliser à la FTD
Dawn Kirby et son mari, Tim, font connaître la DFT. Le couple a récemment fait l’objet d’un article dans le Prairie Press (Paris, Illinois), où ils ont parlé de leur plaidoyer en faveur de la sensibilisation à la DFT. Dawn et Tim ont de bons souvenirs d’avoir vu leur fille, Kara Ike, s’épanouir…
Lire la suite26 octobre 2024 : Rencontre en personne à Middletown, DE
Rejoignez-nous et apprenez des autres qui comprennent le parcours de la FTD lors de cet événement de rencontre en personne de l'AFTD, organisé par la bénévole de l'AFTD Jeanne Cestone, qui aura lieu de 10h30 à 11h30 le samedi 26 octobre 2024. L'événement aura lieu à la bibliothèque communautaire Appoquinimink à Middletown, Del. (204 E. Main Street). RSVP pour cet événement…
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