The Association for Frontotemporal Degeneration

In the summer of 2024, Spencer Cline completed a 3,500-mile cross-country bike ride to raise awareness and support AFTD’s mission in honor of his father, Lawrence, who had frontotemporal degeneration (FTD).

Raising FTD Awareness Across the U.S.

Donate to Support AFTD's Mission

Spencer Cline:

Omni Interlocken Hotel
Denver, CO

AFTD 2025
Education Conference

Connect · Learn · Engage

May 1-2, 2025

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

April 23, 2025 | 4:00 – 5:00 p.m. ET

Perspectives in Research Webinar

How to Find a Genetic Counselor

Kim Jenny, MS, LCGC

Manager of Genetic Initiatives

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Advocacy Update: Amplifying AFTD’s Advocacy

AFTD is deeply concerned about staff cuts and funding disruptions at the U.S. Department of Health and Human Services (HHS), and the potential impact they will have on dementia-focused research…

Study Evaluates the Efficacy of Nasally Administered Hormone for Apathy in FTD

A study published in the journal The Lancet Neurology evaluates the efficacy of the hormone oxytocin as a treatment for apathy, a common symptom of FTD disorders. Co-authors of the…

ABC News Honors AFTD Ambassador Spencer Cline as “Person of the Week”

Raising FTD awareness was a key goal of Spencer Cline’s as he set out from Oregon on a bike ride across America last summer. He got a well-deserved tailwind in…

Speech Therapy CE Course Features AFTD Ambassador Dawn Ducca

AFTD Ambassador Dawn Ducca is interviewed in a new hourlong continuing education episode for speech language pathology (SLP) professionals on the platform Speech TherapyPD. The episode, “Understanding and Caring for…

Hope Rising Benefit Raises Over $1.9 Million for AFTD’s Mission

Top row, L-R: Hope Rising MC Paula Zahn, Hope Rising Benefit Co-Chairs Joan Berlin and Anna Wintour, AFTD Ambassador Spencer Cline, Ariana DeBose, New York State Senator Michelle Hinchey

Dear HelpLine: Advance Care Planning

Dear HelpLine, My spouse was recently diagnosed with FTD and we want to make sure we are prepared for the future. Our doctor said to consider advance care planning, but…

Advancing Hope: AFTD Announces 2025 FTD Research Roundtable Leadership Committee

AFTD has launched its 3rd year of the FTD Research Roundtable. This program offers a forum for drug developers, regulators, academic leaders, and advocates to discuss shared challenges and potential…

FBLI - Senator Hinchey Reintroduces Bill

N.Y. Senator Hinchey Reintroduces Bill to Create State FTD Registry

A bill that would establish a registry of FTD diagnoses in New York State was reintroduced in January by New York state Sen. Michelle Hinchey. Sen. Hinchey and AFTD’s Director…

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