Written by Katherine Long and Lindsay Feinberg in memory of Lindsay’s father, Andrew Feinberg, At the Heart of Caring: A Caregiver’s Journal prompts the reader with daily activities to establish self-care habits. Caregivers and Care partners can build their toolset to encourage reflection, honor their experiences, and express themselves in this handy journal. Starting April 17,…
Julia Dawson, Chief Brand Curator & Creative Director at The Electric Merch Co., recently launched a new set of clothing with MOTHER and DAUGHTER embroidered in the company’s signature pink couture gradient font. This collection is in memory of her mother who had FTD and died in October 2023—and all mother/daughter duos that care for…
In Caring for Carol by Caring for Me, Anthony P. Mauro Sr. recounts the emotional journey of caring for his wife, Carol, through her battle with FTD. The memoir highlights the couple’s struggles with misdiagnosis, the profound losses brought on by this unique type of dementia, and Anthony’s personal growth in embracing life’s inevitable sorrows. This…
AFTD Ambassador Deb Scharper will host the 8th Annual Crusade for a Cure Golf Tournament on August 31, 2024, with proceeds benefiting AFTD’s Research Initiatives. The tournament will be held at Sunny Brae Golf Course (Osage, IA) and will feature a two-person best shot format on 18 holes, four hole-in-one opportunities, plus mulligan and fairway…
HL McIntyre from the UK is holding a fundraiser for her book, “Smple Mnds” where 40% of proceeds from the book sales will be donated to AFTD’s mission for the next six months in memory of her husband, who died in 2018, shortly after his FTD diagnosis. In this book, she shares her family’s FTD…
AFTD volunteer Ambassador Jerry Lazarus and volunteer Paul Lester will be hosting an information table on behalf of AFTD at the In-Person Duke Caregiver Community Event on September 5 from 8 AM - 4:30 PM EDT. Go to the event website to learn more or register.
AFTD volunteer Sharon Land will be hosting an information table at the Lorain County Senior Expo on September 10 from 10 AM-1 PM EDT. Go to the event website to learn more or register.
AFTD Ambassador Dawn O’Gara will host the Jim Tobin Memorial Golf Tournament on September 14, 2024, with all proceeds donated to AFTD for Research and family care grants. The tournament will be held at Pine Ridge Country Club in North Oxford, MA. Cost is $125 per individual, $400 per foursome, or $30 for dinner buffet only.…
Help support AFTD’s mission, get in 18 holes of golf on an exclusive private course, participate in a tennis tournament, and spread FTD awareness by joining AFTD’s 2024 Driving Hope Golf Tournament on September 16th at the Metropolis Golf Club in White Plains, NY! Tickets are available for single golfers, foursomes, and reception only guests.…
AFTD volunteer Amy Canavan will be hosting an information table at the 2024 Living With Dementia Conference in Syracuse, N.Y. Being held on September 18, 2024, from 8:00 AM to 4:00 PM EST, the event will feature local resources and support for people living with dementia in New York. To register, visit the Living With Dementia website. For more…
AFTD volunteer support group facilitator Al Papesh and the members of the group will be sharing AFTD resources and answering questions at the Johnston Public Library in Johnston, Iowa on Saturday, 9/22/24, from 1:15-4:30 CST.
Join Gary's FUB Team on September 23, 2024 from 5:00pm-8:30pm at the Hutton House in Medicine Lake, MN for the 2024 Fundraiser for AFTD! The evening promises to be filled with inspiring moments, including guest speaker Dr. David Knopman, a leading dementia researcher from the Mayo Clinic, and heartfelt testimonies from local caregivers. Enjoy live…
Behavioral variant FTD, or bvFTD, makes up almost half of all FTD diagnoses. Behavioral symptoms can fundamentally alter one's personality, which can be extremely distressing for the person diagnosed and challenging for care partners, family members, and friends. So, learning about and understanding these symptoms can help care partners approach behaviors and support the person…
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event near Richmond, hosted by AFTD volunteer Carrie Edwards. RSVP for this event by emailing cae.aftd@gmail.com. You can also download this flyer to learn more.
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