Calendar of Events
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2 events,
At the Heart of Caring: A Caregiver’s Journal
Written by Katherine Long and Lindsay Feinberg in memory of Lindsay’s father, Andrew Feinberg, At the Heart of Caring: A Caregiver’s Journal prompts the reader with daily activities to establish self-care habits. Caregivers and Care partners can build their toolset to encourage reflection, honor their experiences, and express themselves in this handy journal. Starting April 17,…
The Electric Merch Co.
Julia Dawson, Chief Brand Curator & Creative Director at The Electric Merch Co., recently launched a new set of clothing with MOTHER and DAUGHTER embroidered in the company’s signature pink couture gradient font. This collection is in memory of her mother who had FTD and died in October 2023—and all mother/daughter duos that care for…
3 events,
3rd Annual Dustin Snyder Birthday Bash Charity Golf Outing
3rd Annual Dustin Snyder Birthday Bash Charity Golf Outing
Todd Hartzog and friends are hosting the 3rd Annual Dustin Snyder Memorial Golf Outing on June 9, 2024, at the Colonial Oaks Golf Course in Fort Wayne, IN. The event is in memory of Todd’s friend, Dustin, who lived with FTD. Festivities start at 9:00 am with a shotgun start, followed by a post-golf luncheon.…
3 events,
FTD Clinical Research Learning Institute
FTD Clinical Research Learning Institute
Hosted by the Penn Frontotemporal Degeneration Center in partnership with AFTD, the FTD Clinical Research Learning Institute is a one-day virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research by educating them on the clinical research process. Topics will include FTD…
5 events,
Richmond, Va. Meet & Greet
Richmond, Va. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at East End Branch of the Richmond Public Library. RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about this event, as well as an in-person Meet & Greet happening…
National Meet & Greet for College-Aged Adults Confronting FTD
National Meet & Greet for College-Aged Adults Confronting FTD
AFTD will host a national, virtual Meet & Greet on June 15 for those aged 17-26 who live with and help care for a person living with FTD. We will discuss some of the particular struggles for those of us in this age group and also introduce a new National Support Group for Young Adult…
Newport News, Va. Meet & Greet
Newport News, Va. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News. RSVP by emailing event host Stacey Neathery. You can also download this flyer to learn more about both this event, and an in-person Meet & Greet happening in Richmond earlier the same day.
3 events,
New York City Virtual Meet & Greet
New York City Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19 at 6:00 p.m. To RSVP and obtain the Zoom link, send an email to event host Sam Given at samgivensing@gmail.com. You can also download this flyer to…
4 events,
FTD & ALS: A Collaborative Approach to Diagnosis and Care
FTD & ALS: A Collaborative Approach to Diagnosis and Care
We know of several genes that can cause hereditary FTD, ALS, and ALS with FTD, with C9orf72 the most common. Yet genetics is not the complete story, as these conditions can appear without a known genetic cause. In this AFTD Healthcare Professional Webinar, neurologists from Massachusetts General Hospital who specialize in FTD and ALS will…
National Meet & Greet for LGBTQIA+ Adults Confronting FTD
National Meet & Greet for LGBTQIA+ Adults Confronting FTD
LGBTQIA+ people living with or caring for a loved one with FTD face compounding stressors unique to their population. AFTD is committed to providing a safe, affirming environment to access resources and psychosocial support for care partners while navigating the FTD journey, with people who understand their lived experiences. AFTD will host a national, virtual…
3 events,
VA Caregiver Support Annual Summit
VA Caregiver Support Annual Summit
AFTD staff will have an information table during the annual summit of the VA New Jersey Health Care System in East Orange. The event, which this year is titled "Beyond the Caregiving Role: Seeing the 'Whole' Caregiver," is held in the third floor auditorium in the East Orange VA Medical Center.
3 events,
Second Annual Kim Rose Cure for Dementia Wings & Rings Golf Outing
Second Annual Kim Rose Cure for Dementia Wings & Rings Golf Outing
Christin Rose and her family are hosting the 2nd Annual Kim Rose Cure for Dementia Wings & Rings Golf Outing on June 28, 2024, at Glenview Golf Course in Cincinnati, OH. The event is in honor of Christin’s mother-in-law, Kim, who is living with FTD, and to celebrate her 63rd birthday. The fun starts at…
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