Calendar of Events
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1 event,
Webinar: FTD and Genetic Testing – A Practical Approach
Webinar: FTD and Genetic Testing – A Practical Approach
About 40% of people affected by FTD have a family history with at least one other relative diagnosed with some form of neurodegenerative disease. Knowing as much as you can about your own, or a loved one’s, FTD diagnosis can be a crucial tool for your journey. But it is also important to know the…
1 event,
Webinar: Living the Grief of FTD — The Winding Paths of Loss, Love, and Resilience
Webinar: Living the Grief of FTD — The Winding Paths of Loss, Love, and Resilience
In FTD, losses begin with the first presenting symptoms. Even before a diagnosis, persons diagnosed and their families experience tremendous fear and worry -- which, over time, develop into feelings of grief and loss as more about the diagnosis is understood, accepted and integrated into daily life. This ongoing grief remains a companion throughout the…
1 event,
2nd Annual PAC Conference
AFTD is a co-sponsor of the second annual Positive Approach to Care Conference, which will be held virtually via Zoom. The theme of this year's conference is Living Under the Umbrella of Dementia. Click here to learn more and to register.
1 event,
Vermont, New Hampshire & Maine Virtual Meet & Greet
Vermont, New Hampshire & Maine Virtual Meet & Greet
Join AFTD Volunteer Connie Archambault for a Virtual Meet & Greet for Vermont, New Hampshire, and Maine. E-meet (via Zoom video conference) others in your area whose lives are affected by FTD. RSVP is required to receive Zoom meeting link and password. Limited spots available. To RSVP, or if you have questions, please contact Connie…
1 event,
CANCELED: Philadelphia Marathon
The Philadelphia Marathon has been canceled in response to the COVID-19 pandemic. The event has been rescheduled for November 2021. Note: Anyone who was registered on the AFTD-Team for this race, and/or anyone who fundraised for AFTD through this event, your registration/fundraising will be honored for next year’s event. For more information regarding the AFTD-Team…
1 event,
Ellie’s Butterflies
Ellie's Butterflies is a children's picture book written by Alecia Smith, described as a "loving story about understanding dementia." When Alecia's father was diagnosed with FTD at the age of 61, all three of her children were under the age of five. Alecia searched for a children's book that could help her have a conversation…
2 events,
Webinar: Gene Therapy in FTD
Webinar: Gene Therapy in FTD
Gene therapy is showing promise for treating a wide range of diseases, and related clinical trials are emerging for FTD. This webinar, part of a new Perspectives in FTD Research series conducted in partnership between AFTD and the FTD Disorders Registry, will cover familial FTD, gene therapy, and the roles that people and families affected…
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